My story, for what it's worth: Direct to you Nephrectomy

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New Member

Date Joined Oct 2017
Total Posts : 1
   Posted 10/27/2017 11:07 AM (GMT -7)   
In 2014 I was getting an ultrasound of my kidneys to check for cysts when the technician stopped, left the room, came back with the face of doom and told me she wanted to take a few more pictures, just in case ... I knew something was up, and I was right, this was an historical moment in my personal history - the day everything started to go to hell. The shadow she saw was a tumor, and in Jan. 2015, I underwent a partial nephrectomy of my right kidney. Seen in my left kidney at the time was another tumor, but it was only half the size of a little fingernail - so we went on a wait-and-see basis for a while. It went from fingernail to golf-ball size between CAT scans, at which point (April of this year) I was scheduled for a relatively new approach in kidney surgery involving slushy ice and a crack team of kidney wizards in Oakland ... but when they opened my kidney, instead of one golf-ball tumor, there were 12 tumors distributed from stem to stern, necessitating full nephrectomy of my left kidney and a silly waste of good slushy ice (AND they removed a rib to get to it - that's just plain WEIRD). I now live with a 3/4 kidney, which doesn't quite do the trick; I am surfing right above dialysis level (12-13% GFR; BUN 70 mg/dL; creatinine 4.55 mg/dL), in a constant state of nausea, mental confusion, general malaise and aches and pains. When I sink below 11%, I'll be on dialysis (at which point rumor says I'll experience the cleanest blood I've experienced since I was a kid - 100% pure Jonny blood). Meantime, I'm on SSDI, I can't drive or operate machinery other than Netflix, I'm an 63-year old invalid on an amazingly restrictive diet and a short leash. And there's not a thing I could have done to avoid it, and there's nothing I did that caused it, just the unkindly toss of the genetic dice, I came out the loser. And the adventure is not over yet ... I still have that 3/4 of a kidney remaining to possibly cook up more kidney cancer. I'm due for my 6-month CAT scan to check for "shadows", I hope there are none, but I do seem to be good at whipping up the Big KC ...

If nothing else, hopefully you'll be able to look at my story and say, "Well, at least I'm better off than that guy ..." If you are in worse shape, then please accept my heart-felt sympathies ... I'll be in worse shape soon, my doctors assure me. Thanks for listening.

Bay Area Guy
Regular Member

Date Joined Jul 2010
Total Posts : 295
   Posted 10/30/2017 6:19 PM (GMT -7)   
My goodness jarthur. You've been through a lot. I'm not sure what to say other than please accept my best hopes and wishes for your future.
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