New diagnosis of stage 3a CKD

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CKDshock
New Member


Date Joined Jan 2018
Total Posts : 1
   Posted 1/13/2018 6:19 AM (GMT -6)   
I am 42 yr old female stage 3a (CKD) 1.2 Creatine 47 GFR 22 BUN my Dr. sent me to a kidney specialist last week since she had noticed my creative levels were slightly elevating with every blood test. I have high blood pressure that we have been trying to control. I thought the Dr. would talk about watching it maybe talk about food so I was in total shock when I find out what my levels actually meant. I have no symptoms maybe a little pain in my right side by my kidney but that’s about it! She wanted me to do an ultrasound and then said depending on those results we would do a biopsy. I had an ultrasound done today and I don’t know the results yet but the tech took a long time on my right kidney and seemed to be typing a lot and then breezes through my left so that has me very worried I didn’t ask any questions because I know she can’t say anything anyway..... So this has me extremely concerned I can’t stay off my phone which I know I should looking up every possibility of what can happen and why she would have taken longer on one side and it’s driving me crazy my brain won’t stop!!! So now just trying to patiently wait. I have an appt on Feb 2 and my Dr said she would only call if she needed too! Well that’s great so if she calls I know something is wrong! So now I just patiently wait! confused

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 300
   Posted 1/13/2018 3:44 PM (GMT -6)   
I can't really comment much on the particulars of your case. I come to this site because I had a partial nephrectomy for kidney cancer back in 2016, so I see if people are looking for any kind of advice or have questions about what to expect.

The one thing I do know is that Dr. Google is most definitely NOT your friend in terms of getting information. I was diagnosed with a possible 1.8cm lesion in my right kidney in December, 2013. I was referred to a urologic oncologist in January, 2014 and he said the standard of care was to wait and see, as many of these small lesions don't grown any further. (He did say he could have it taken out if I couldn't psychologically handle a possible cancer inside me.) So I waited. But I looked at pretty much every kidney cancer website on the internet and what I found was a combination of:

1. Outdated information, given that the treatment of kidney cancer has improved tremendously over the last couple of years.

2. Conflicting information. Site A might say to do one thing, and Site B says doing what Site A told you to do will kill you. So when you look at websites, you need to determine who is sponsoring the website. If it's a private for-profit company, they're likely trying to sell you something.

Finally, I got fed up with alternately panicking and relaxing and I just said the hell with looking health stuff up on Google. Fortunately, my urologic oncologist was available via email and he was very, VERY patient with my questions.

So, the moral of the story is to not look at Google, but I would suggest giving your Doc a call on Tuesday or Wednesday (since Monday is a holiday) and asking what's going on. It's your health and it's your psyche, so it's your right to ask whatever questions you need to ask to feel comfortable.
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