Hi, I'm new to this forum it was recommended by my sister who deals with other autoimmune issues. I have SLE and a ton of what I call additives that come with it. I have been diagnosed on and off for over 15 years and recently met with a rheumatologist as symptoms have started to become unbearable for me. I have started on plaquinel (spelling wrong) and it is making me light headed, naseaus and feeling just ill. I'm OK with that as long as in the long run I get results and the side effects stop. My major questions are these:
Discoid rash - I do not have the typical butterfly rash as seen in many lupus patients. My facial rash is over my face, forhead and now starting down one side of my neck. They are patches of red, raised, discoid areas. The areas of from 2-5 cms around and there are close to 10 patches. Since starting the med. I have not noticed any difference. Does anyone know what may help with this?
Steroids - I am a registered nurse on an oncology floor and have seen so many devastating effects of steroids. I was placed on them years ago and vowed to never take them again. Possibly harming myself out of spite? Does anyone have anything positive to say about them?
Flareups - I don't seem to get any 'flareups' it's just constant. None of my symptoms (fatigue, arthritis, weight loss, rash, swollen glands, sjorgens symptoms, raynauds symptoms etc) ever go away or lessen at all. Is this similar? If you do have flare-ups what parts get worse and what seems to lessen them?
I appreciate any answers, thanks so much for "listening'
Wife, Mother, Nurse
SLE with all the additives, sjorgens, raynauds, RA etc.
Plaquenil, Effexor, serequel for sleep.