Biopsy/Prof Hughes

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Ann Ireland
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Date Joined Apr 2006
Total Posts : 511
   Posted 1/2/2008 7:58 AM (GMT -6)   
Was talking to Prof. Hughes in London UK today and he tells me he has one patient in Milan who has sjogren's who has my muscle enzyme condition and that the muscle expert on this is in Washington! Forget it! I live in Ireland.
But at least Hughes talked to me and he is gonna talk to Dr. D'Cruz at the Louise Coote Unit in St. Thomas's where I hope to get to on a government 'treatment purchase fund' scheme.
I told him my breathing was awful as I find it a struggle to physically breathe.
Anyone know how I can find a Prof. Fred Miller in Washington DC!!!
xx for now.
Twin and I are gonna visit our dad's grave now. Mum is buried the other side of Dublin with her own family as she asked 'Don't you DARE bury me with your father!' so we didnt. They didnt get on.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/2/2008 8:36 AM (GMT -6)   
GREAT! that you were able to talk to Dr. Hughes . . . I hope he can pull some strings for you regarding your health care. Washington??? I agree . . . too far away. . . but perhaps one of your docs could consult by telephone conference confused just a thought. I hope you do find a way to get your health care funded. . . . that would be a real load off.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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Date Joined Aug 2007
Total Posts : 4415
   Posted 1/2/2008 1:15 PM (GMT -6)   
To find this mysterious Dr. Miller in Washington DC, go to your favorite search website (such as Google or Yahoo) and type in the name of your muscle enzyme condition and "Dr. Fred Miller" and see what the search results are.  If there appears to be more than one possibility, print a list of them and take the list to your doctor and ask if he can tell you which Dr. Fred Miller is the one he is talking about.
Good luck,
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, Very Low Lymphocyte Counts (T-Cells & B-Cells), malabsorption/malnutrition, possible Lyme Disease (Igenex Lab IgM WesternBlot positive), etc.
Meds:  Pulmicort, MaxAir, Injectable Vitamin B12, Herbs, Nutritional Supplements, Essential Oils, Homeopathy.

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