i would one of the ones with kidney problems and i am also one of the ones that had a kidney transplant. when i was diagnosed in 1995 (then 13 yrs old) they did a biopsy and found me in late stage 3 very close to stage 4, but my pediactric nephrologist was very agressive with my disease and he was able to keep me from ESRD. in the first couple of years after i was diagnosed i flared up 2 twice before i graduated high school. i almost had to have a transplant in '98 and i was also on dialysis, but for some unknown reason my kidneys started working again and i didnt need the transplant. from '99-'03 i was in remission and it was great. i was taking maintance dosages of prednisone and i was also taking plaquenil for the lupus and every was going great until the fall of '03 i went into a flare and my kidneys never recovered so in the spring of '06 i ended up having a kidney transplant (my dad was my donor) and i actually just flared in march of '07. so for me it has been a long, hard, bumpy road but i'm still here fighting. i actually have avascular necrosis from the prednisone and they are talking about
knee and ankle replacements and core decompression for my hips. i know all this probably sounds really bad but unforunately this was and still is my experience with my lupus nephritis. this last flare was really bad though because the docs said that it was possible with the new kidney that i wouldnt flare anymore but apparently i am in the 10% of transplant patients where they actually still flare after the surgery, but i have my support system and i am seeing a pyschologist who is helping me cope with my emotions and the docs put me on anti-depression meds, but remember no one person with lupus is the same. you may or may not have the complete opposite experience that i have. good luck we're here if you need us. and welcome to the forum you will find some wonderful people here, i know i have, i dont know what i would have done if i didnt find this site, i actually wish i found it when i was younger and so confused and feeling so alone with my disease.
Hugs and prayers, If it was easy being a lupie,
~Suzanne~ the whole world would be one
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain