I've not posted in awhile, I've been feeling much more fatigued. Yesterday, I had a really rough day. I saw 3 doctors, 1 bone density scan, 1 biopsy, and 12 vials of blood drawn. I was told I'm going to start humira on Monday, as my joints are showing deformity on MRI. I also was told that my MDS may be advancing and I'd need further tests.
If my MDS is advancing on to leukemia it's bitter sweet, it 1 means I'll get closer to my bone marrow transplant, but 2 it means I'm gonna get sicker and sicker and my time on earth may be cut a lot shorter than I anticipated. I'll have to await the results on my bone marrow biopsies before I know whether it's advanced a lot or a little.
So, I sure you're wondering where the good news is. Well, finally my attorney called me today and I've won my SSDI case. I'll be receiving 3 years of back pay, (attorney's exact words) and I already qualify for medicare. Even though I've got health insurance it's nice to know that I've got it just in case. I'm so happy about
this, I was down today with all that has gone on in the past 36 hours and then having to buy 100 gallons of heating oil and $3.75 a gallon didn't help much. My back pay will certainly come in handy now, I can turn up the heat. Just wanted to share my news. Love to you all and I hope you all are feeling better.
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.
Post Edited (Barbara Lee) : 1/4/2008 10:17:29 PM (GMT-7)