Posted 1/5/2008 9:57 PM (GMT -6)
Yeah, Rosie and Lynnwood are right. Instead of trying to have one particular name for all these overlapping disorders, it's a lot easier on the mind and the sanity, if you pick just one, like MCTD, and accept the treatment that will come for everything you have. The same treatment is used for all of those conditions, so trying to nail down the exact name of what you have isn't really the main issue. Although, it would be nice to know what it is for sure, that you have. I can understand that entirely.
Be good to yourself and perhaps think of this as MCTD, which really is lupus, and all the other crap combined into one big long word, LOL. The treatments are the same, and that is the most important thing - getting the right treatment. Autoimmune disorders like these suck. And I absolutely understand why you are feeling like you're going crazy with all this. It really does wear you down mentally. I'm right there with ya.
Yes, you can have sjogren's on its own. I think it's odd that you need a biopsy done every other month. The only thing I can think of for that is that your doctor thinks this is fairly aggressive sjogrens. Just make sure you really get all the info on this. Are you fairly knowledgeable with sjogrens and what it involves?
I hope we've helped to calm you! I know it's hard. So hard. We're here for ya,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus