Welcome to the forum. Oh yes, anxiety is a major player in this disease. I struggle with it too. I get the obsessive compulsive thoughts as well. It's all part and parcel with anxiety, to have those uncontrollable thoughts that just drive you nutty. It's totally normal. What you need to do is get that anxiety under control. Doing it with medication is common, but if you can do it drug-free, what an amazing accomplishment.
Check out this link. This website has been instrumental in me being able to taper down (and hopefully off) of my anti-anxiety medication. Many of which are very addictive. I even had an opportunity to talk one on one with the wife of the founder of this company. They live in my city, so it was handy! Lots of brilliant information and encouragement here. Here's the link..
I know how hard it is to have this diagnosis, and NOT be anxious. I think it's perfectly human and reasonable to have these feelings. We just need to know how to control them and not let them take over our lives.
All the best, talk to you soon,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus