Posted 1/8/2008 4:39 PM (GMT -7)
I have been diagnosed ?sjogren's and need sips o wather during the night plus saliva replacement and artificial tears but first thing in the morning is HELL.
I have candida, cracked tongue/sore too, I drink water, wash teeth and use mouth wash and try to get sorted for breakfast and tidying whilst kettle boiling etc and my mouth goes paper dry in an instant once I start activity. I also feel abolutely crape. Once starting moving about I feel nauseous, really shattered tired and very ill. It takes me at least three hours to feel reasonable. I am also like an anti-christ, depressed, I scream and the nearest gets it.
I am clumpsy and have not idea of space, I tend to crash into things and its very painful.
I try to do sort of fiddly things like disentangle the phone and computer wires and get all flustered and bothered cos I dont seem to be able to do it, the hands dont work.
I feel feverish and boil up and if I bend down to get something from bottom drawers or floor It is an awful feeling.
Most of the extremes of these might get better during the day. What I hate is the frustration of not being able to do simple things like disentangle wires et al, the cursing you wouldnt find down a sewer. I get very distress about it all.
Does anyone identify with any of this.
Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream