Posted 1/9/2008 6:02 PM (GMT -6)
Yeah, you should mention ALL your symptoms to your rheumy/doctor. Numbness, tingling etc, is pretty important to mention. It's good to rule out if you are having actual disruption to your nerves (via bad back, disc degeneration, etc), or if it's just plain old stinkin' lupus that is causing it. I'm actually dealing with this exact thing right now too. I have arthritis in my neck, and lots of tingling and numbness in my hands and feet. So I'm having an EMG and another test, which I can't remember the name of, to figure out if the arthritis is causing the symptoms, or if it's my lupus.
Always, always, always, mention symptoms like this or anything else to your doctor. They won't think your a hypochondriac for bringing them up. You have lupus, sweety. It's going to be a bit of a gong show when it comes to your health now, and they know that. Unfortunately, when it comes to lupus, everything becomes more complicated and more serious. Even little things have to be taken seriously. You'll learn so much about this disease in the coming weeks and months and even years. You'll even start to talk like a doctor! (that freaks my family out, in a good way. LOL)
I have mentioned that I participate in an online support group. My doctors think it's great. The more support you can have with this disease the better. When I first mentioned I was a part of this group, they cautioned me. Which is the responsible thing for them to have done. We're not doctors here, and have limited knowledge. So it's always important to make sure you're getting the right information. If you don't want to tell your doctor, you don't have to. I think wording the forum as a "support group", might be a good way of saying it!
I hope this encourages you!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus