Hi, again, jdeet! I am 46 now and, by the time I had made it to the level of symptoms when I received a diagnosis and, then, treatment, my ankles were quite swollen. In looking back, my symptoms started at about
age 17 and I was 40 when it became apparent that I actually had something more serious. I suspect that I had many remissions in that time period and this is typical of lupus. There is not really anything preventative your brother can take to prevent full-fledged lupus - at least not anything I am aware of at this time. Like Rosie says, we all fight this until the last moment and try to maintain as normal a pace as possible. It took three years (age 43) for me to receive a diagnosis and treatment.
Currently, with the help of medications, I can keep a full-time career and enjoy some personal fun. I am vey careful to pace myself but, if I push too hard, I really pay for it in pain and extreme fatigue. My husband is very supportive and my children are both in college now so this is all a possibility for me. I can tell that I cannot keep up even this pace for too much longer. I hope that I can make it four more years so that I can retire with my full 30 years in education.
As for your brother, I cannot tell from your descript
ion if he has lupus. If he does have the start of lupus, he needs to keep a journal of his symptoms and keep at least a yearly appointment with a rhuemetologist to keep on eye on the progression. Every lupus patient is very different. A rhuemy will appreciate detailed notes from him to help in the detective work necessary for a diagnosis.
Lupus and RA and LOTS of Medications!
Posted 2/8/2008 9:44 PM (GMT -7)
Bump!! Up you go for Jenises!!!! Blessings! In His Grip
AlwaysRosie " We can't control the waves, but we can learn how to surf!! "
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Posted 2/9/2008 8:45 AM (GMT -7)
Thank you AlwaysRosie, this was very helpful.
Now I'm tetering on Lupus, Fibromyalgia, Lyme Disease and Lymphoma
Needless to say, I'm scared.
Brainfog is cruel.
Posted 2/9/2008 9:27 AM (GMT -7)
I had symptoms for 13 years before being diagnosed that ranged from mild to moderate.
When I did finally get dx'd, at that time my symptoms were:
All over body aches
Rashes on face, chest, forearms and thighs
Good luck and please keep us updated. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB For he wounds, but he also binds up; he injures, but his hands also heal.
Posted 2/9/2008 3:20 PM (GMT -7)
hi jenisis, i started with a red blotch on my forehead it was tiny and i didnt think much of it , it grew slowly and then made 2 blotches. i would have leg pains so bad that it felt like a sprang just lasted a few days at a time. that was about 5 yrs. ago. i went to a dermy who did a biopsy and said lupus, then a rhumey says no, all blood work has been neg. my symptoms have gotten worse. i have corpule tunnel in both hands, i get very tired, my legs hurt mainly at night, my hands tingle and sting, i have a red dtty rash on my upper chest, i have pain in my neck.i am just learning to not push myself to hard.i still have no dx. it can be confusing.good luck to you and keep your head up,sheshe
Posted 2/9/2008 7:21 PM (GMT -7)
The very first thing that happened to me was pain in all of my joints..... then, I got this awful pain that would move around in my chest.... that lasted for ever....got infection of the sclera...on the eyes... that was most painful.... My symptoms were ALL very painful.... the tops of my feet.. I could not walk sometimes... the only thing that helped me was hot water...
Posted 2/9/2008 7:51 PM (GMT -7)
For me I couldn't walk anymore, I found my self not being able to get myself up out of bed, tried all the time. Then I got a letter from the Red Cross telling me that I could that donate my platelets anymore. So, I carried myself to the doctor for a check-up and here I am 5 yrs later.
Take care of yourself
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, CALTRATE-D, CENTRUM AND CREAMS
Enjoy what you can today and leave the rest for another day.
Currently it is Tuesday, January 22, 2019 1:14 AM (GMT -7)
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