Went to neurologist, says he can't help, increased the meds for pain, and thats it. When I asked him why were my muscles wasting he just said "I dont know"
Sat on my rollator (walking frame and seat) outside the bank in the rain and rang dear Prof. Hughes of world renown and told him I am at my wits end.
I am convinced now more than ever that my problems are autoimmune based.
I feel like getting on a plane to London and presenting at the Louise Coote Unit where the good Prof wants me.
I dont think the irish doctors really want to think laterally or research why one individual is so ill for some unknown reason. there are too few docs around here and most are overworked trying to do what they can for the illnesses and diseases they DO understand.
I dont think anything went right for me today bar the fact that I was nice to neuro and he was nice too and I stayed calm but no answers, not even hope, just keep taking the painkillers.
Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream