I wish I could tell you a magic formula for recovery but I can't. In my case, I mentally drew a "line in the sand" and said that I wanted to survive. At the same time I said that I was willing to do whatever was needed to recover. Of course, I had no idea what that meant at the time but having the will to do it is the most important thing.
Early on I said I wanted to return to my life passions....skiing, hiking/climbing and golf. There are so many other positive things in my life...wife, sons, grandchildren and they all helped but those other things were instantly gone and were ingrained in my life. I used them as my beacons.
At the time it seemed idiotic, insane that I would ever ski again. Walking seemed an impossibility. So I set much more humble goals when I entered the rehab hospital....stand, reach, and swallow were my goals. I had another set of goals that I set each hour....whatever the task at hand was. If I had not done that I could never have "climbed the mountain"....it was too daunting. But taking it an hour, a step, at a time was the approach that worked for me.
I was not foolish and tried to both push myself and also respect that I had an extremely limited amount of physical and emotional energy. To this day I still practice this discipline.
Also had a roommate in the rehab hospital who was as motivated as I was. We were different personalities and had different auto immune diseases but we were both crippled and wanted to return to a normal, or more normal life. We fed off each other and are friends today. Unfortunately, my friend is still partially crippled but he is doing OK.
Setting goals, NOT setting time goals, being persistent and prudent all will help you to recover. Expect setbacks....they will happen. Be realistic...it is OK to have your ultimate goals and you might reach them...or you might not. I am no where near my ultimate goals after 2 years but my doctors and therapists did not think I would walk at first. Now I am skiing, playing golf and planning a hiking trip. Somewhat of a wimp still but life is good again despite its' limitations. Maybe it is easier for me to accept that there are limits due to my age. However, I still feel I have not found my limits and it will take another 1-3 years to find my recovery potential.
That is my recovery story in a nutshell. No magic formulae but just lots of effort and a stubborn belief that somehow I can recover and return to normal.
Hope that helps.
By the way, if you have severe disability it helps to have great rehab docs and therapists and I did.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it." Helen Keller