Posted 3/19/2009 3:16 PM (GMT -6)
Welcome Twinkiet and hello again MsKay
One of the hardest parts of this illness is that there little written about it in comparison to Lupus etc. and it is so variable depending on the person. Their is one gentleman on here who has a great encouraging story about his MCTD. He really embedded the importance of determination and optimism for recovery. His name is Bill.
Twinkiet, I am so sorry to hear your story. I think I have heard somewhere about autoimmune illnesses causes miscarriages (I had one several years ago-way before I even felt ill), but it is even sadder that you don't have confidence in your Drs I happen to have an amazing Family Dr. but I too had to search for another Rheumy. I searched online and found an arthritis and autoimmune foundation in my area, and I contacted them to see which Drs specialized in what I had. I was given two names and within 2 weeks I was at my new Rheumy's office and diagnosed. As for your periods, it could be you need a D & C if you haven't already had one. This is often necessary after a miscarriage. I wouldn't know about the MCTD connection as I have been post menopausal for a few years ( I lost my ovaries) although I am having spotting problems now which I never had. My Gyn thinks that the prednisone is screwing up my estrogen/progesterone levels, so we will see. As for your depression it is very understandable. You really have gone through 2 traumas in the past few months. You mentioned you are on your own. Do you have any family or friends as a support system? Even if you do, I would keep reading and posting on here. There are so many ladies who are really knowledgable about this illness and I am sure they will be replying to you.
MsKay I chuckled when I read about your husband trying to tell his mom about what is happening. In the very beginning we went through the same "I don't know". I went from fibro to RA to MCTD so it is a roller coaster for sure. I'm sure that if you do get a positive diagnosis of MCTD you will be spending alot of time explaining to people about what you have, even those in the medical field. Actually I have learned to only tell and explain to those that need to know for important reasons and for anyone else who sees me stiff or puffy I just say I have an arthritic condition and everything goes on normally, which is what I want and need.
I will keep watching the forum to see how you both are doing.
Blessings to you