Sorry - it was getting past my bedtime last night...
My UTI has to be pretty bad for me to feel it...I have a really high pain tolerance. Usually it is: you need antibiotics because you have an infection...OH! OK.
As for dealing with things...it is pretty much a roller coaster ride. Sometimes I can joke about getting fat from the prednisone, being tired and forgetting things... But then sometimes, none of it is even a little bit funny. Pretty much, I think that is how it is with everybody. I think it has a lot to do with how much you are hurting too.
End of last week and earlier this week - I was not a nice person to be around. (In fact, I apologized to my co-workers ahead of time in case I bit their head off). Of course - I had a migraine and since I'm allergic to sulpha - can't take anything for it...just have to ride it out. It has finally subsided - so I'm a little bit nicer.
I'm very lucky...my co-workers are very understanding about my situation. The two men I share an office with even unscrewed the flourescent light bulbs above my desk because of my migraine. And, my boss told me the other day that he appreciates me "hanging in there as much as I can". We are a small company - so even one of us being gone is stress on everybody else. It meant a lot to me that he said that.
Hope you have a great day! Good luck at the urologist tomorrow!
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil