To answer your previous question Jessie, it took me about a year to really start feeling better. To the point where I could start to taper down the prednisone. I had a lot of inflammation going on, so it took quite a bit of time. I did notice the drugs really kick in and start to work in about the 6 month time frame. But to achieve a place where I felt I could work 15 hours a week part time, was a whole year. It's different for everyone though. Your situation might be quicker to recover, or take longer. It all depends on the person, how aggressive the treatment is (yours sounds aggressive, which is good), and how well you look after yourself. Diet, sleep, stress, etc. It's really an entire lifestyle change we have to make in order to conquer this!
I'm just reading your last posting here....... read, read, read....Okay! I think your rheumy has you tapering too quickly. If you've been on 20mg for a month, that's a pretty long time. The formula for a successful taper (hopefully), is 2.5mg every 2 weeks. So right now, you're tapering at a rate of 10mg a week! That's way too fast. That's why you feel like crap!
I wouldn't wait to call her Jessie. Get on the phone today if you can, before the weekend and let her know your concerns. That taper is too quick.
Cellcept is a fairly new drug that is used for lupus. It's an immune suppressant, similar to Imuran, but different too! Hehe... I know Lynnwood has a lot of experience with it and has had really good success on it. I'd talk to her about it if you're curious. I don't know very much about it.
I find living with this disease very frustrating too Jessie. I was also very active before I started getting sick. I feel like I've lost a major piece of myself. Each day is a test of my patience and ability to cope with what is placed before me. Having this forum has been so good for me. I've learned so much in the last few years being here. The encouragement I get and the advice and prayers of these men and women are a blessing. I hope you can find your strength with this too.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus