Well, I'm still on prednisone actually. I have been since day one of my diagnosis, back in 2000. My highest dose was 40mg. Most of these last 7 years I've been on a dose under 10mg. Right now I'm on 8.5mg.
For many people, the combination of prednisone with either Imuran, or plaquenil, Cellcept, etc, is the best treatment. Some bodies NEED prednisone as a long term, or life time treatment. I seem to be one of those people.
Prednisone is a fantastic medication. It has many side effects that doctors don't like, which is why they try to keep us at as low a dose as possible. But if you need to be on it, you need to be on it! Part of having lupus or a disease where the adrenal glands don't work the way they should, means that prednisone use will save your life.
Don't be in a hurry to get off this medication. If you feel much better being on a higher dose. Stay on it. You're doing more harm to your body by going up and down and up and down on the dose. Or even being off it entirely. You will get to know your body very well and the signals it's telling you. I find that even a small increase or decrease of 1.5mg will dramatically improve the way I feel. It doesn't take much!
I have found that the combo of prednisone and Imuran has been incredible. I have my life back. My lupus is very quiet, and it's because I have kept the prednisone in my system.
I hope you have a better day today Jessie. Stay encouraged! You're learning more and more about how to manage your lupus and your medications. This is good! Knowledge is power!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus