Thank you so much for your words of encouragement...
I don't even know what to say... I've put on almost 20 pounds so far. Last night, I saw some pictures of myself from Christmas and about fell over. I had to go buy a new winter coat the other day because I'm too fat to zip the one I have. I need to start walking on a regular basis. I just haven't had the energy. Which, I know is a catch 22...because if I would start walking, I would probably have more energy.
Right around Christmas, I ran into a lady from my church at a store. She just had gastric bypass surgery so, she's lost a lot of weight recently. She is also a nurse. Anyway, she looks at me and says "your face is really puffy". I replied "yes, I'm on prednisone". Then she says: "I told Barb...she has moon face, I'll be she's on prednisone!".
It really ticked me off. Mostly, because she's a nurse and should realize I didn't need to be reminded what I looked like.
Part of me wanted to be a real jerk and say: OH MY GOSH! I'M SO GLAD YOU TOLD ME BECAUSE I HAVEN'T LOOKED IN A MIRROR FOR FIVE MONTHS! THANKS FOR LETTING ME KNOW!
As far as the bone stuff. I take Caltrate-D twice a day which has:
600 mg calcium, 400 IU Vitamin D, 50 mg magnesium, 7.5 mg zinc, 1 mg copper and 1.8 mg manganese per dose. And, I know without the lupus drugs - I'm not here for long.
I also take a multi-vitamin. Other than the normal lupus drugs and depression/anxiety meds, that's it.
I am considering changing doctors. I have this silly notion that if you are a doctor who supposedly specializes in auto-immune diseases, then you should know the symptoms they can cause. And, apparantely, I'm not the only one with the itching thing - yet, when I asked him about it, he looked at me like I had six heads and didn't know what to do with five of them.
A friend of ours has friends that the wife has had lupus for a long time. I think my husband and I are going to meet with them. She used to go to the same rheumatologist as I do, and then switched to the Cleveland Clinic. I'll be interested in seeing what she has to say.
Luckily, I've always had low blood pressure (my normal used to be 98/68). It is around 110/70 now. Except for last Thursday when I went to the urologist it was 140/70. But, I wonder if the cuff was too small for me.
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil