Posted 1/25/2008 7:24 PM (GMT -7)
Hi everyone. Been a while since I've been on. Been very busy and constantly dealing with pain.
My job has changed. For the last 1 1/2 years I have worked from home as a medical transcriptionist for a hospital and been able to deal with the pain and fatigue caused by both the lupus and PBC. Doing the transcription job involved sitting all day and typing. Well, long story short, my transcription job is being eliminated and the hospital where I work has had me coming to work in house and I've gone from sitting all day and resting when I needed to at home and now am on my feet for almost 8 hours straight every day for the past few weeks.
My whole body is in a flare from all the extra energy it is taking to be on my feet all day and walking constantly. Sitting at home and typing was gentle on my body and although I had pain it was nowhere near what it is now.
I have to keep the job I am presently doing as I have bills to pay and no other means of support except for me. I'm just starting to look for other work but that could take quite a while. Plus I absolutely have to keep the health insurance and prescription benefits for the PBC medicines and stuff.
Any ideas on how to deal with all this? It's not like I can tell my boss "no I can't do this or that". I have to do what I'm told or will be let go. I'm just feeling at a complete loss as to what to do. I don't know how long I can continue at this pace and pain level. I come straight home from work and am in severe pain by then and just literally collapse on the couch and stay there until going to bed and not sleeping well at night and get up and have to do it all over again.
How would I go about maybe collecting SSDI? Do I have to be a certain age in order to collect it? Are there legalities for people like us that I could look into as far as my work environment is concerned - like they legally have to let me sit for part of each day, etc.? It's gonna take a lot of time for me to find another job that will work for me as far as the diseases and symptoms are concerned so am wondering if there are other options.
Sorry so long and drawn out. Guess I needed to vent a little as well.
Lupus 2008; Primary Biliary Cirrhosis 2007;IBS 2004; Chronic Hives 2002.
Medications: Allegra, Zantac, Ultram PRN, Xanax, Darvocet, Ursodiol.