24hr Urine question and small vent

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Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 1/26/2008 3:28 PM (GMT -6)   
Now that I feel more co-herent I need to ask a question of those who have experience. The resident/intern said my protein level in my 24 hour urine was up but from earlier ones still in the normal range and expressed concern that we watch it closer. Then the big wig doctor (one whom I hate and who thinks he knows everything- this is the same guy who said lupus was just RF negative RA and that I couldn't have both SLE and RA) said there was no need so long as it was in the normal range. I am still waiting for an opening with the kidney doctor who takes my insurance and knows about lupus and kidneys. I see the regular OB the 8th and am wondering if I should ask them to do the 24 hour urine again to be safe. I really do not want to end up in kidney failure- we already lost 2 family members to kidney failure induced by lupus.
I am not supposed to have to see the bullying jerk I ended up seeing at the high risk doctors' office but he was the only one there. He is always horrible to me, asks if my rheumy sent any records and who she is- I have told him 6 times yes she sent records and her name. He walked out before he had her name. The intern/resident also has lupus so she knows what I am going through but I really wish she had been the only one I saw. That jerk did a manual exam to check my cervix and I still feel bruised inside (I was in the office Wednesday). Then he said my last blood sugar test had me borderline- It was well within the normal range but he seems to want me to become diabetic- and I needed another blood sugar test. I said I would have one if he would repeat it when I finished my prednisone taper. He scratched it off his sheet and never said another word. I know prednisone can raise blood sugar and I was on 10mg then. Not only that I am down to 5mg now and if the taper goes well will be off Pred on Feb 7th. So why do a test based on something that in all my other pregnancies was never a problem when the last blood sugar test was fine- 133 and the cut off is anything above 140 and the blood was drawn 10 minutes early. He is a total @$$. I hate him so much. With no problems showing up so far why do I even have to go to that office?! I hate the drive and it is pointless unless serious complications arrise. I know they are being careful with me but darn it all why should I be subjected to such a jerk, especially one who insists I cannot possibly have RA and SLE and who snears every time he asks my rheumy's name. Like he thinks he is better than her or knows better than her. The man is rough when he examines me and acts like he is God and I do not deserve his time. I am just supposed to fall in line and not ask any questions. Excuse me, this is my body and my baby and I will darned well ask questions if I freaking feel like it. He can just kiss my ....... I never wanted him involved in my care in the first place. He has a serious attitude problem and I decided that I would not tolerate being treated like dirt by doctors who work for me a long darned time ago because it was doctors like that who almost killed me.

Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

Regular Member

Date Joined Oct 2007
Total Posts : 100
   Posted 1/26/2008 8:12 PM (GMT -6)   
Oh my gosh... I'm so sorry you have had to deal with this.  I'm glad you came here to vent.  Stick to your guns.
I have no experience in this area - but, if you feel you need to have the test again - force the issue.  Especially given your family history.
Again...so sorry
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil

Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 1/26/2008 10:01 PM (GMT -6)   
hey redrose,
sorry to "hear" that you have one of THOSE doctors who believe they know anything and everything and the medical world revolves around them. i have had a few of those and after the first visit, i always made an appointment with a different doctor. what are you seeing that doctor for, u didnt mention in this post? are there other doctors there that do the same thing that he does? if so, i would pick a new doc asap, because you are right you (and every patient) should never be treated that way. doctors have tried that with me before especially since i am somewhat younger, they dont believe that i know much about medical things or my disease, or medications. but when they do try that, you better believe that i quickly explain to them that not only have i been dealing with my disease of 12 yrs i also have medical background and i have read, research, and followed current information and they realize that i am not a patient to put on the back burner, if i feel something is wrong with me i will call the doctor and i will make an appointment tell them whats wrong and i expect them to do what is needed. and you should be the same way, remember its not only you that you are taking care of but your baby too and you both should be well taken care of by all your doctors. if you cant get a new doctor, would recommend actually making an appointment just to talk to your doctor, or talking to someone above him who can talk to him for you, cuz what he is doing is just plain wrong. hope you get it worked out and i hope you find the answers you are looking for. oh and as for the doc always asking for your rhemy's name, the next time you are at your rhemy's get an extra business card and give the doctor one of them to shut him up once and for all about that. :)
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 1/26/2008 10:03 PM (GMT -6)   
Hi redrose, I'm sorry you're dealing with such a lousy doctor. He sounds like a real tool. Poor guy probably never had any decent social interactions because he was too buried in his books (or his head was stuck too far up his you-know-what). If you need a doctor that has social skills (and most people do, but you'd be surprised at how little some people care about their doctor's bedside manner!), you need to stick with one who has 'em. The resident sounds good, but you can't see only her because she is still in training (evidently under this tool's tutelage), which is unfortunate.

Regardless of his attitude, he's probably right about the 24-hour urine - if it's in normal range, that's good enough. Slight variations over time are expected, and the tests are very sensitive, so you can be reassured that normal is, indeed, normal. Which is a relief! I know how disconcerting it can be, though. Seeing the kidney specialist will hopefully give you more reassurance. I just saw my own kidney specialist for the first time (as far as I know, I don't have lupus, but I have had 3+ protein in my urine for several months now, which evidently is not a good sign). S/he will know a lot more about your lupus-related kidney issues than any other doctor, so I hope you get in soon and get some solid answers.
Co-moderator - IBS Forum

New Member

Date Joined Dec 2007
Total Posts : 14
   Posted 1/26/2008 10:57 PM (GMT -6)   
You have every right to feel the way you do. I would seriously file a complaint against him and I would never see him again. People deserve more and you especially. Don't give up. Take care.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 1/27/2008 3:45 PM (GMT -6)   
Thanks everyone. The problem is he is the head of the high risk department. Since there is only 1 high risk department that takes my insurance and only 1 at the hospital I want I am pretty much stuck. My regular Ob's office did something so that this is the first time I have seen him in months. But he was the only doctor there because the other doctor who was supposed to be there was doing an emergency surgery. To get any OB to follow my pregnancy I had to agree to see the high risk department too. Since I deliver very quick there was no way I was going to use the hospital 45 minutes away. The one I am using is within 10 minutes of us and there is still a small risk I could end up delivering in the car given how fast my last 2 labor/delivery experiences were. I hate that I deliver so fast because it removes all choice about seeing this guy which means I am subject to his whims. I still feel bruised inside today which says exactly how "gentle" this one is during exams.

On the 24 hour urine I think it was the level of change that worried the intern/resident, apparently I went from the extremely low end of normal to the high end of normal in a month. What worries me most is that when transferring the urine to the container I spilled some every single time. The lab said no big deal the test would still give a decent ballpark but given just what was said I wonder if it would have been normal if I hadn't spilled.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/28/2008 9:26 AM (GMT -6)   
Redrose, I'm sorry you have to deal with that jerk of a doctor. I don't blame you for being worried about the increase in protein in your urine - you don't want stress on your kidneys, especially during pregnancy. I did a few 24 hr urine tests and it is hard not to spill some and also there's no way to get all the urine from the catch cup into the big container. The first 24 hr urine test I did was at the high end of normal and my rheumy and my pcp both said it was nothing to worry about. The second 24 hr test I did came back above normal, but wasn't extremely high, so now I just get monitored every few months with a UA and if I have protein I do a 24 hr test.

I hope your docs do closely monitor your protein, especially with your family history.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 1/28/2008 4:57 PM (GMT -6)   
Yeah it is rather scary. I have to call my rheumy tomorrow cause she was out today.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

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