Hi everyone it has been a while since I was here.
So this is the issue. Started seeing new Rheumo doc a year ago and since seeing her my ANA has been negative. My first Rheumo doc did my ANA every 6-12 weeks for a year and it was always positive and often would rise. He diagnosed me with sjogren's and Mixed connective tissue disease. Now understand that I had my last positive ANA 2 months before I saw my new rheumo doc and had the negative ANA. I did not feel better in fact I felt worse. She began to treat me like many doctors do to woman with autoimmune diseases like I was crazy and it was all in my head. In Dec. 07 I suddenly had blurred vision and was seeing smoke and dulled colors. I went to the primary doc who sent me to ER where they did multiple labs, CT of head w/ and w/out contrast, and a lumbar puncture. for reasons of keeping this post short I will tell you 4 day in the hospital 2 blood patches of leaking lumbar pucture, MRI and MRA of the head and neck still had no idea why blurred vision. After admit went to optomologist, neuro, and had EEG to check for optic nervitis no one can find any reason for blurred vision which has never gone away just gets worse sometimes. Then 2 weeks ago was diagnosed with colitis took cipro and flagyl for 2 weeks. At that time primary doc tested me for celiac disease and pernicious anemia both negative not only that B-12 was high?? Now I am back to square one. I will list my symptoms in the hope that someone can tell me where to go from here. Also if anyone lives in the Dallas area and has a good rheumo doc and can give me their name I would greatly appreciate it.
muscle pain and weakness
tingling in hands, feet, top of head, and right side of back near shoulder blade
dry eyes, skin, and mouth
increased light sensitivity
sudden intolerance to salt
FYI I do not have fibromyalsia,
Dx: Mixed connective tissue disease '06, sjogren's '06, GERD '05, insulin resistance '01, ADHD '01, major depression '98, polycystic ovarian syndrome '97
Adderal and lots and lots of vitamins