Posted 2/3/2008 3:10 PM (GMT -6)
Welcome to the forum. You have found a great place for support and learning.
We all suffer from the brain fog. For some of us it's most of the time, and for others, it's only part of the big story, that comes and goes with flare ups of the disease. It's definitely NOT being lazy! It's an actual medical issue that is quite debilitating as you are experiencing yourself.
With my own experience with lupus and all its "friends", I've had to completely change my lifestyle and work. I went into self employment in order to manage my own schedule and work as much or as little as I can handle. I don't have anyone to answer to except myself! It's been a true blessing. I'm a photographer.
So figuring out ways to make life easier for you is crucial. Limiting stress (easier said than done), and maintaining a really good raport with your doctors is a good start.
I'm not familiar with plaquenil, but I do know it takes some time to really kick in. I like Hippi's suggestion of talking to your rheumatologist about a supplimental treatment like prednisone. It's a "kick it in the pants", "kill the inflammation" kind of medication!!
Looking forward to talking with you more,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus