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Posted 2/6/2008 11:45 AM (GMT -7)
Well that was fast! I got a call from the doctors office she.s sending me at 10:00 from a brain/head scan. I thought they were going to do my spine too but the hospital said no.

I talked to the nurse this morning about my fear of switching anti-d's she said I shouldn't have a problem because I'll be going from one to the other right away. (didn't give me any comfort) she did say if I have any problems to let them know. I'm gonna do what Patty suggested though and call the pharmacist.

I guess she won't send me to a neurologist unless they see somthing on the scan.

The shot she gave me yesterday is really helping me back. I don't know how long it will last but I'll be thankful for what ever time I got with a almost pain free day.

take care all

love

carol

God Bless

Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis

Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 

I will never leave you nor forsake you!

 

Posted 2/6/2008 12:08 PM (GMT -7)

Carol,

   Good luck with the MRI tomorrow. I hope it goes well. I'm glad to hear your pain is better today with the shot you got yesterday. Hopefully, it will last awhile! Take care and let us know how the MRI goes.

                                                          Babs

 

Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD

Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,

mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 2/6/2008 2:21 PM (GMT -7)
Carol,

What good news about your back. I really hope that the shot gives you relief for several months. When it wears off, ask your doctor if you can have another one. A lot of people have shots a few times a year.

Ask the pharmacist if your old anti-d is in the same drug class as the new one. If so, you should be ok. But follow your doc's instructions: call if you notice anything.

Good luck with the MRI tomorrow. I hope you have someone lined up to take you. Let us know how it goes. I'll be thinking of you!

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia

Posted 2/6/2008 4:53 PM (GMT -7)
Carol, I'm also so happy about the relief you got from the shot. Was it cortisone? I used to have to get cor***one shots in my thumb and they would last for several months. Lets pray that you have the same experience.

I'm doing ok, by the way...thanks for asking.

i look foward to hearing the results of your MRI and I know you'll let us know as soon as you hear from your doc.

(((Hugs)))

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

Posted 2/6/2008 4:59 PM (GMT -7)
Hi Carol:

It's amazing what those shots can do for us huh. I hope your MRI goes well tomorrow and that you'll get some answers. I think it's a good idea speaking to a Pharmacist about the anti D hope all goes well with that. Know I'm pulling for you as usual.

Love ya,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Posted 2/6/2008 5:21 PM (GMT -7)
Hey Carol, just wanted to say good luck with the MRI. I hope it all turns out fine.
Posted 2/6/2008 7:36 PM (GMT -7)
Great Carol!! The scan will be tomorrow and no time to worry over it!! I love it. . . . and SO glad the shot is helping your back. . . wooo hooooo!!! Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator
Posted 2/6/2008 7:49 PM (GMT -7)
Hi Carol,

 

Wow, that was fast wasn't it!  Good luck tomorrow. Let us know how you make out okay.  I think the idea to ask your pharmasist about the anti d's is a good one too.  Glad the back is still feeling good! 

 

Have a good sleep tonight!

Ginny

I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13


33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted 2/7/2008 11:17 AM (GMT -7)

Well I'm home. Other than having my head in a football helmet for a half an hour being pounded on it all went well. The last 10 min. they put dye in my vein kind of may me a little sick so i'm setting here eating a sandwhich. They said it takes about 4 days. So I guess i'll know next week.

Good new the home health care people start tuesday. Bad news they start at 8 am sad . Yucko! but i'll take what I can get. 8 to 11 tuesdays and thursdays. That will be a big help. They can add a day if need be but we'll see how it goes for now.

ok gonna finish my lunch talk to ya later

thanks for the enoucragement

love carol

God Bless

Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis

Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 

I will never leave you nor forsake you!

 

Posted 2/7/2008 9:16 PM (GMT -7)

Hi Carol,

    I know your glad that over with. Those MRI machines are soooooo noisey!! You would think by now they could invent something a little quieter. Hopefully, you will get some answers soon and feeling better.

   I'm sure the home health care people will be a great help and relieve some stress, except for having to get up so earlier... redface . Keep us updated and take care. You are in my thoughts and prayers.

                                                       love, Babs

 

Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD

Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,

mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted 2/7/2008 10:19 PM (GMT -7)
Carol, I'm sorry I didn't see your post unil now. I'm glad your test is over now and I hope the dye doesn't make you sick for too long. I hope you are getting lots of rest. I'm really praying that everything looks good on your MRI. Love and hugs, hippi Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears   Clickable:   LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/   Co-Moderator: Lupus and CFS Forums
Posted 2/8/2008 2:04 PM (GMT -7)
Tuesday??? Finally?? I'm glad they have finally scheduled your hep Carol. Hmmmm, you'll get your help and your MRI results around the same time. Keep us posted! Blessings! In His Grip AlwaysRosie              " We can't control the waves, but we can learn how to surf!! " Psalms 139 Co-Moderator - Lupus Forum UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis Clickable Links:   Lupus Resources     Lupous.Org    Lupus Criteria (4 of 11)    Lupus Chapter Locator
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