Welcome. I will say something I am not sure anyone else did- moon face depends on the person. I get it at 5mg. Actually I gain 10lbs the first week I am on 5mg of prednisone. But I have been an abnormal case all along. I will never live like I did before I became ill. Of course I can't recall what I lived like since I was so young. What I can do is do things that make me happy and give me a chance to be part of the world. I am in grad school and doing well. I may not take many in person classes, but I manage. I am having a baby any day now, some people thought it would not be possible. I may not work, but I do things that help people whenever I can. I have the hope of working someday, but have accepted I am not likely to ever be able to handle a full-time job. You figure out what you can do without making yourself worse and you run with it. You sleep more, rest when you need to, and follow your doctor's orders. We all do the best we can. I may be miserable some days, but I am alive. That is more than I can say for a couple of my family members. So long as I do what my doctor recommends I have a chance to have a normal life span and will be able to enjoy almost anything I want to do. You cannot go on as if you are not ill, but there are so many ways to adapt.
I want to give you hope and encouragement rather than telling you the bad. A few people around me try to remove all my hope and if I listened to them I would give up. (Family members) This place is wonderful because someone on here will understand what you are going through and we all will offer support and a place to vent when it gets to be too much. Never let someone tell you that you can't do this or you can't do that unless they are saying that because doing it would endanger your life or health and they are an expert with enough knowledge to KNOW what they are talking about. I had many tell me I couldn't do college but in 3 1/2 years I had a bachelors with high honors and had been accepted at EVERY SINGLE grad program I applied to. People tried to tell me I couldn't possibly have a baby safely, yet after careful research into the issue and doctors I am 35 weeks and the biggest problem is water retention and high blood pressure- problems perfectly healthy women have. My baby is doing fine. The people saying these things were not experts, they were people who had not a clue what they were talking about but who assumed they knew enough from a few paragraphs of outdated info.
Make sure you get a bone density scan soon and one in a year if you stay on pred long term. I say this because if you have the bone density loss side effect the faster they catch it the more they can do to prevent it from becoming serious by giving you bone builders and more calcium.
Congrats on the weight loss, I will be trying to lose weight after the baby comes.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec
Post Edited (redrose77) : 4/26/2008 1:42:45 PM (GMT-6)