Yup Hippi is right I am on this and VERY glad I am taking it. I am likely going to be able to get off my plaquenil and just take this as I am down to one pill every third day from 400 mg a day. It's super cheap and has no side affects. There is a group and several websites about
it. I did a lot of research on it before taking it and talked to several dozens of people and 5 doctor's around the world who specialize in just this medication. The pharmacy i get it from filled 6000 perscript
ions last year of this so it's not new. I am glad it's finally getting the press it deserves as I know one lady who has SEVEN AI issues including lupus, sjogrens, leukemia and myashia gravis (sp) and she has drastically reduced her meds and is having great success on this. It is having the largest success in cancer and MS. But I do know 6 lupus people that I talk to regulerly who take it as well as myself. I would post links to sites where lupus patients comment on it on here but don't think I can. The sjogrensworld site there are 5 of us from there taking it and several threads on there about
it and several threds on this site in the chrons section about
it. I still have my eye dryness but I was putting drops in around 10-12 times a day and now I just do it in the morning and my eyes are fine all day. My dry mouth is pretty much gone again except first thing in the morning. If I never had to sleep and deal with morning crap I would feel pretty good lol.
UCTD and sjogrens ( terrible dry mouth) all biotene products and refresh liquigel eye drops and now LDN therapy which is a life saver
Post Edited (canuckgirl) : 2/9/2008 9:54:19 PM (GMT-7)