You are not crazy. I spent years being told I was crazy. I was ready to give up and let whatever was wrong with me kill me if the doctor thought nothing was wrong the day I walked into my rheumy's office for my first visit. I had been to so many doctors, many had seen and dismissed the butterfly/malar rash, my swollen red warm and painful joints, the constant pluersy, the hair loss, mouth ulcers, even my history of pericarditis was dismissed. I had one doctor tell me I was causing all my visable symptoms and the few small abnormalities in my blood work with my mind. I did not trust the medical profession to save me from the illness that was destroying me. Yet, my rheumy took one look at my symptoms, history, and the pictures of my facial rash and I was diagnosed in less than 15 minutes after meeting her and she outlined a plan to begin treatment. IT has been a slow hard fight since then, but she literally saved my life, on more than one occassion. She didn't just treat my lupus, when my gallbladder stopped working and I was unable to hold ANYTHING down my PCP and one of the local ERs decided I had IBS and sent me home with no treatment. I called my rheumy because I was in so much pain and also because I needed to hold down my lupus meds. She insisted I got to the other hospital and ask for a special test. That test showed my gallbladder wasn't functioning. When they took it out it was 3xs the size it should have been. It could have ruptured just as an apendix does, but along with spesis would come digestion of my internals by the bile and other digestive enzymes that would leak out into my abdominum. I would have died a horrible agonizing death. Instead I had a minor surgical procedure that removed the gallbladder. My rheumy is a miracle to me.
What you need is to find a doctor who cares, one who will not give up just because nothing makes sense. My blood work is negative. Yet, I have almost every other one of the 11 criteria except for kidney issues. So basically at any given time I would fit 8-9 of the criteria because occassionally one antibody test comes back weakly positive.
Get copies of you lab results and start from scratch with a new team of doctors. Your pcp is an idiot, but at least you know what she thinks instead of being lied to. Never believe you are crazy simply because doctors refuse to believe that something can be wrong with normal labs. My great grandma and great aunt both died because their labs took too long to go positive.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia