Hi Patty, KaAl, redrose, thanks all. for responding.
Patty don't worry about
calling. You worry about
getting better. I'll be fine. Just had a bad day the other day. You know like we all do from time to time. Tired, sick and sick and tired. But i'm doing much better. My head was just in a bad place but coming here and venting always helps. Take care of yourself! love ya
Redrose, I'm sorry that sounds awful going without. Yes you're right you do need help! Bless your husband for trying but it sounds like he's got enough going on that you both need extra help. Talk to your doctor tell them your concerns. You're right you have to eat and you diffinently have to stay hydrated. Thanks for the tip I will find out about
a PET and about
imuron. I've heard of others here that use it but I havn't really checked out what it's about
. I'll look it up. thanks for the tips.
KaAl, No I havn't been DX'd for sure. I'm on my 3rd rheumy though. If you ask my doctor I have Lupus. She is adamment that it's what is detroying my lungs. But one rheumy said I was ok. Or I might have CREST and one said I have primary billiary cirhosis. which is another A/I.
Several years ago when I was DX'd with COPD my pulm. said some of my tests were coming back that I had indications of Lupus. We didn't really discuss it because I didn't see the connection an I was already dealing with enough with COPD. I figured Lupus was the last thing I was worried about
. I didn't know a thing about
it and didn't care at that point. You have to understand it was a really bad time of my life. My husband had died about
2 years earlier and my son was in Iraq. It was all I could do to keep it together. I started dealing with anxiety and depression, a lot of pain in my back.than in 2006 I moved to oklahoma. I had to search for a new doctor. I went to urgent care and and the hospital and a few other places in the mean time because I still had to have meds for my lungs. Anyway everyone did blood tests and they all kept coming back with ANA + 1:2560. than my sed rates were coming back in the 60's, than I started coming back anemic. Lots of UTI. Than I met my doctor that's I have for over a year. I was running a really high fever felt I got hit by a truck and felt like I had the flu from hell. My feet were swollen up to my knees. They were bright red and I couldn't even put my shoes on because they wouldn't fit. She took her own set a tests and said I had the highest ANA that she had ever seen. she looked at my back. I have these ugly spider vein looking things. and some on the v shape of my chest where the collar is
open. She put me on predisone to get the swelling under control and 800 mil. of plaq. Since than we have been trying to get me to a good rheumy. I'm not sure what that means. Because the last rheumy said my liver is enlarged and he thiks it's PBC but she said no way so she's sending me to someone else. Problem is I can't get in for 4 months. Anyway that's my story for what it's worth. No more or less frustrating than everyone elses story. This disease stinks that's all I know.
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF, Cancer survivor. Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.
I will never leave you nor forsake you!