Posted 2/13/2008 12:24 PM (GMT -6)
Welcome! I wish you weren't dealing with all this, plus your fibro. I know what that's like. I have lupus and fibro. I visit you guys often in fibro-land!
Well, for your doctor to discount lupus and RA is stupid. You have an elevated ANA. That's one of the first blood tests rheumies will look at. If it's elevated, and you have symptoms of lupus (which you do, by the way), then the next step would be to do a full lupus blood panel of tests. Yes, you can have normal test results, but most of us have at least one positive antibody test come back. There are many antibody tests! Your rheumy can explain all that to you.
Everything you've mentioned can be symptoms of lupus for sure. The purple toes and fingers could be Raynaud's Phenomenon. I have that too. It's very common in lupus.
I have that weird red sunburned look to my neck too! It's weird.
Hair loss, crazy periods, digestion issues, mouth sores, joint swelling, rashes - all symptoms of lupus.
What is so nuts about fibro and lupus is that they mimick each other a lot. Some of your fibro symptoms could be lupus, and vice/versa.
Definitely get in to see your rheumy as soon as you can. If you can, take pictures of your rashes, mouth sores, anything visible. Keep a diary of all your symptoms, etc. Let us know how else we can help, okay,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus