I hope someone can answer some questions for me.
First a little back story positive ANA, SSA, SSB, and MCTD antibodies 10/05-1/07. All labs negative ever since. Having to change PCP due to PCP thinks I am crazy.
1. I have pain everyday PCP and Rheumy think it is impossible for me to have pain with negative labs and refuse to give me anything for pain. Ibuprofen no longer works to control pain. Should I see a pain management doctor?
2. I am worried about taking pain meds because I don't want to become addicted. Is this a resonable fear?
3. When I do take a pain pill I am able to get things done like I could before I got sick. I feel normal and productive. When I don't have anything for pain it takes all I have to just clean my house. Then the next day I am even more exhausted and in more pain than I did before cleaning. Does anyone else deal with this?
I have tried other meds such as:
Lyrica, mobic, neutronin: makes me so sleepy I feel drunk I have trouble even walking!
cymbalta, zoloft, and wellbutrin: causes me to have involintary movements so bad I look like I have parkinsons.
I am extremely sensitive to meds and I know it frustrates doctors but it frustrates me too. I would love to be able to just take anything they want to give me but a I can't.
I have an appt with new PCP what questions should I ask him to interview him for the ability to be compassionate to the patient with confusing symptoms?
Dx: Mixed connective tissue disease '05, sjogren's '05, GERD '05, insulin resistance '01, ADD '01, major depression '98, polycystic ovarian syndrome '97 Hypoglycemia '07 hypothyroid '07adderall, prozac, synthyroid, multivitamin