Neurologist today

Ann Ireland

Veteran Member

Joined : Apr 2006

Posts : 511

Posted 2/15/2008 9:20 AM (GMT -7)

Hi,
I went to a neurologist today, a disaster! He was here in Dublin Ireland and used to work in Boston,
I have tried to 'google' him and he does seem to have creds to burn.
he also seems to have an interest in immunology including sjogrens.
He gave me no eye contact.
Looked into a laptop.
Did the usually 'silly' test, eg touching nose etc.
Said my walking fine and no sign of weakness.
Said my symptoms could be delayed reaction of all the anti-psychotics.
said I might have fibromyalgia and that would cause the 'funny walking'
In other words a complete dismissal.
I am upset AGAIN/
I swear, no more doctors until I get to London.
anyone know of this guy, name Dr. XXXXXX. Once based in Boston for many years although still youngish.
Ann

Post Edited By Moderator (Ides) : 2/16/2008 6:36:20 PM (GMT-7)

hippimom2

Veteran Member

Joined : Jul 2005

Posts : 5403

Posted 2/15/2008 3:21 PM (GMT -7)

Sorry that you had such a bad experience. Hang in there Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985 Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears Clickable: LUPUS INFORMATION & LUPUS RESOURCES . Please allow HealingWell to continue helping others by donating: https://www.healingwell.com/donate/ Co-Moderator: Lupus and CFS Forums

redrose77

Veteran Member

Joined : Sep 2005

Posts : 2573

Posted 2/15/2008 4:40 PM (GMT -7)

Wish I could say anything about him but no clue. I say don't bother with the local docs and get to London ASAP!

Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

Butterflake

Veteran Member

Joined : Jun 2006

Posts : 1650

Posted 2/16/2008 8:18 AM (GMT -7)

Hi Ann. I really have a problem with neurologists. Two out of the four I've seen were cold and aloof and a third one dissed me off because his colleage said I had a conversion disorder. Now we know I have lupus (and unfortunately all the positive blood work and chemo that goes with it) and my rheumy referred me to my current neuro, so he's somewhat forced to listen. Regardless, my first visit he stared at his laptop and picked lint off his pants. I've seen him three times and he still has no answers, so I'm just chillin' right now and waiting for my CellCept to work. My heart goes out to you sweety, but know that this species hasn't evolved with compassion. I sure hope everything goes well in London. (((Hugs))) Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS

Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil PRN: ambien neurontin promethazine xanax

Better living through chemistry :D Donna

Ann Ireland

Veteran Member

Joined : Apr 2006

Posts : 511

Posted 2/16/2008 12:56 PM (GMT -7)

Butterflake, I laughed my head off at your post, and even rang twin in London to share a few of your comments.
You are SO right! We both split at the comment 'this species hasn' evolved with compassion' and 'picked lint off his pants.' Sounds better than 'picked fluff off his trousers' which is the way we'd say it here.
You cheered me up but I had really already cheered up immensly. I am gonna sent a post now about real nice stuff and what I did today and a few simple DIY tips.
Thanks all for the words of encouragement, but I mean it NO more consultants until I get to London
xAnn

Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream

Ides

Forum Moderator

Joined : Nov 2003

Posts : 7182

Posted 2/16/2008 6:43 PM (GMT -7)

Ann,
I removed your physician's name from your post. While your comments about him were somewhat negative, I don't think you were trying to slander or insult him. Insulting or defaming non-members is against our rules. We don't want to have Healing Well get into trouble. The doctor or one of his associates might read the things you wrote and take offense.

BTW, I understand fully your frustration with your appointment. I hope you find more compassionate and concerned consultants elsewhere.

Moderator Crohn's Disease Forum

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Ann Ireland

Veteran Member

Joined : Apr 2006

Posts : 511

Posted 2/22/2008 3:32 PM (GMT -7)

docs are VERY sensitive folk are'nt they!!! Last time I was in hospital one was rude and the second time he came to bedside I asked for a nurse to be present and he roared his head off with offense!
Stormed out, left the country, came back apologised, didnt ask for a fee but wouldnt see me again!
Touchy touchy eh?
Do you think they need to see docs?

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