crlauinger, I'm sorry you are going through this and yes, it is very very frustrating. It's sad that so many if us have to go through years and years of diagnosis limbo and docs saying there is nothing wrong because our labs aren't bad enough.
Hang in there and don't give up. I always say that you are the expert on your body and you know it better than anyone else and you know if something is wrong. Don't give up looking for a good doc who will really listen.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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