Hi all, I know this is a months old thread but don;t have time atm to search deeper and this topic caught my interest, so I would like to know if anyone has answers out there for me.
Some of the things described here are very similar to things I have dealt with for about 15 years now, but have never been able to get a Doctor to take seriously because I am otherwise an active person.
To sum things up, I will re-ask the question I asked someone back in high-school- "Is it supposed to hurt to walk?" For a few years by then I had noticed burning, uncomfortable fidgety pain in my hips and thighs, and sometimes in my calves ass well. At other times this pain was also in my forearms.. can't remember from anatomy class but mainly the large round group of muscles underneath the forearm abutting the elbow. The arm pain would make my fingers want to curl in, and I often would have to tie a shoe string around my fingers and then tie the other end around my upper arm the hold them extended and stretch them to relieve the pain.
With my legs, it has always just been painful to walk. When I describe this to ppl they generally blow it off and don't take it seriously so I end up pushing myself and going on walks with my wife, or while vacationing in earlier years with friends on hikes, tours on vacation, etc. I would then pay dearly for it in the evening with the severe aching burning pain in my legs and feeling of "rusty hips" that would just throb and burn.
This pain is so constant and nerve wracking that it leaks into my sleep and dreams, where I almost nightly dream that I am club footed or something similar at times attempting to hobble around but being barely able to move my legs, and mostly feeling (even in dreamstate) the awful pain.
Does this sound like what you are talking about, or anything else anyone has ever heard of? I am quite grateful that I stumbled onto this site, because it sounds in many ways so similar to my issue, but I would like more information. Where can I find it and under what type of listing? It would be so wonderful to finally be able to put a name to this fairly constant, very unnerving pain. I dread taking our dogs for walks, let alone vacations where we will be doing walking tours and the like, and would so like to have some understanding of what is going on. Most of all it would be a god send to finally have some Dr finally take me seriously and listen to me. Because I have been told so many times it was this or that minor thing that will go away, I have had to tell myself that and try to ignore it, and it has really affected me psychologically, I believe, as well, because it is real and it makes an otherwise wonderful, happy life have a hidden, extremely miserable side I feel i can't talk to anyone about.
Sorry again for bumping such an old topic but if just one person can give me any direction or answers it would mean the world to me!!!!
Thankyou for your time!