Does anyone have an idea about this symptom?

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Date Joined Jun 2007
Total Posts : 40
   Posted 2/17/2008 7:57 AM (GMT -6)   
For the last year I have had tingling sensations ranging from a single electric shock in arm pit and arms, to large areas of pins and needles mainly feet, hands, top of head, and back of my neck. But, lately it has been more intense more of a burning sensation from hips down to feet it this feeling last 10 mins to hours. This feeling is intense and when it is happening and I am standing my legs and feet turn beet read and all the veins in my legs and feet stand up. The veins protrude sometimes 2-3mm from skin surface.
Then yesterday was sitting down and burning began only in feet but skin was normal color I stood up and feet immediately turned red so red they were almost purple and were hot to the touch. Now this is the weird part I walked a few steps they go back to normal color stop walking and stand still turn red/purple again. Through out the color change process burning sensation never changes or went away.
So, My question is has anyone else had this before and if so did your doctors say anything about it or send you in any direction to find out why?

Dx: Mixed connective tissue disease '05, sjogren's '05, GERD '05, insulin resistance '01, ADD '01, major depression '98, polycystic ovarian syndrome '97 Hypoglycemia '07 hypothyroid '07

adderall, prozac, synthyroid, multivitamin

Post Edited (kncb95) : 2/17/2008 6:11:06 AM (GMT-7)

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Date Joined Jul 2005
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   Posted 2/17/2008 10:17 AM (GMT -6)   
Kasey, I haven't had the symptoms you have talked about, but it definitely sound like something you should contact your doctor about as soon as possible. Please keep us updated and let us know what you find out.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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   Posted 2/17/2008 11:25 AM (GMT -6)   
   I agree you need to see your doctor about this. I have this type of pain but, not with the color changes. Mine is from neuropathy and sometimes the feet and hand tingling is from Raynaud's for me with the color changes. I have never had color changes in other parts or vein protruding anywhere.
   Please let us know what you find out. I hope your doctor gets this under control quickly. Take care and you will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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Date Joined Dec 2006
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   Posted 2/17/2008 11:35 AM (GMT -6)   
Kacey, I get something simalar to what you are talking about. I don't know for sure but I think mine is do from lack of oxygen. You said you have had bronchitis. You need to check with your doctor You may need to have a chest xray. Lupus can effect your lungs.
let us know
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!

lifesworth living
Regular Member

Date Joined Jan 2008
Total Posts : 28
   Posted 2/17/2008 1:50 PM (GMT -6)   
kacey, i have this all the time, i get little burning sensations in my back and my hands and fingers i have also gotteh them in my feet, my knucles turn white and the rest of my hand turns light red my feet get red but walking on them will stop it, the doc says this is just normal for me i think he is not normal, haha, sorry thats not much help but i do know what it feels like. sheshe

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Date Joined Mar 2005
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   Posted 2/17/2008 4:08 PM (GMT -6)   
These feelings could be caused by vitamin B12 deficiency, it would be good to get a blood test to check your levels!
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New Member

Date Joined Feb 2008
Total Posts : 7
   Posted 2/17/2008 5:19 PM (GMT -6)   
To Mom46-
I am new to this cite and keep reading different forum headings.  I just happened to get into this one and read about the lady's tingling and pain, then I read your reply.  I am about to start another series of tests for the autoimmune disease that is such a mystery to ALL the doctors in my area.  One of the suspects is Raynaud's Phenonmenon.  My maternal grandma also had it.  What kind of meds are available for it as it is quit painful at times??  I also have a terrible time healing the cracks and sores that I get on my fingertips, too.  Any suggestions???  confused

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Date Joined Dec 2006
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   Posted 2/17/2008 5:56 PM (GMT -6)   
Hi Lady Hendley, welcome to the forum. I can't answer your questions and I'm concerned Bab's (mom46) might not see this. You might want to start this as a new topic. There are many people here who could probably answer your question and would like to welcome you to the group. Oh an don't feel alone it's a mystery to everyone.
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God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!

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Date Joined Jan 2005
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   Posted 2/18/2008 2:05 PM (GMT -6)   
Welcome LadyHendley,

I started a new topic for you so the others can say hello. Okie is right, Babs isn't here much and may not see your post here.

I hope you get some responses in the other topic.


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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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Regular Member

Date Joined Apr 2007
Total Posts : 39
   Posted 2/18/2008 5:55 PM (GMT -6)   
It is so weird how you described that because I've experienced almost exactly the same thing.  The only difference is it's mainly my legs only rarely has it affected my arms and if it does its in smaller patches. The freakiest thing for me was when you mentioned how the pain and color changes worsened if you stood still I was always like ants in the pants can't stand still for a second or i was attacked by it.  Usually the only thing that helped was elevation or if I could stand it....rubbing it out.  
For the first year i experienced it, it never happened in front of the doctors so they dismissed it.   By year two it was happening all they time and they saw it, stared at it, poked and and had all sorts of consults come in and nobody knew what it was.  My neurologist told me it was rhematological and the rhematologist said it was neurological....they just didnt know.  Eventually they found the neuropathies and concluded that the nerve damage was the cause.  I as prescribed Lyrica for the neuropathies and it has helped sooooo much.  I can stand long enough to actually accomplish something now and experience way less attacks of it.   By the way do you ever expereince intense itching with the burning on your legs? 
Dx:  Lupus, Hashimotos Thyroiditis, Peripheral Neuropathy, Fibromyalgia, Arthritis 
Rx:  Plaquenil, Levoxyl, Lyrica, Ibuprofen, Hydrocodone, Lasix, Lunesta 

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Date Joined Mar 2006
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   Posted 2/19/2008 2:26 AM (GMT -6)   
Lady Hendley,

My daughter has a bad case of reynaud's, but I had never connected it with the dry skin on her hands that cracks till it nearly bleeds. I also have dry skin and have finally found a product that helps both of us. (My heels crack and bleed). I found some cracked heel cream at Bath and Body Works that works wonders on our dry hands and feet. I even use it as a body cream. When it goes on sale at half price I buy out the store and keep it all over the house. The same store has some wonderful, soft, and warm sleep socks that I have gotten for my daughter. I don't know what meds are given for reynaud's and if your doctor recommends something I'd be interested in learning more.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

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