Hi Ann. Hopefully in London the docs will do lots of other fancy tests like EMGs (which check for multiple muscle conditions), CT scans and/or muscle biopsies. My brain is completely wigged out, but the best my neurologist can do is say "It's from the Lupus." Anyway, there is lots more fun waiting for you if your neurologist cares to explore. On a serious note, I'm sorry that you're having such a rough time. I'm sending you lots of positive energy. (((HUGS)))) Love, Butterflake
HI Ann. RSD is short form for Reflex Sympathetic Dystrophy or Complex Regional Pain Syndrome. It is a painful neurological disease whose hallmark is "pain out of proportion to the injury: ( ie a sprain or fracture). It is unexplained persistant pain.
My leg and foot is always freezing and changes color, goes from normal color to purple.
I had never heard of it before neither until I ended up with it and I wish that I had never heard of it now that I have.
I hope whatever is wrong with you that you can get some releif. My heart goes out to you, hang tight and don't give up.