I was browsing information on Lupus and came across this forum. I have some questions and after reading some of the posts I feel a few of you may be able to help me. So thank you in advance to all who respond.
I am a 30 year old female with problems. lol! For the past few years i've been pretty ill. Body pain, lots of fatigue and of course the depression that goes along with it. The end of last year I had some normal blood work done and my sed rate, platelet count, WBC and alkaline phosphatase were all elevated. I had a follow up test done in January and all were still elevated. Sed was 28, not extremely high, but still high. Platelets were 555,000, white blood cell 14.2 and alkaline phosphatase 111. Around the same time the nurse noticed my heart rate was high, 124. The Doc followed with a 24 hour holter monitor and it showed sinus tachycardia (high heart rate) with my highest rate 159 at rest. I'm now seeing a cardiologist who is in the process of running tests. In the mean time my doctor wanted to test me for lupus and did so by ordering a lupus antibody test, i will know the results Friday. He has already tested me for RA with a ANA? test and it came back negative. Now from what i'm reading the ANA screen is also the test used in diagnosing Lupus, so i'm a bit confused. This last blood test I had did seem different because a lot more blood was drawn and one vial was actually placed in a cup of ice after it was drawn. So is this actually a different test and are any of you aware of the actual name of it, because the only thing written on my orders for blood work was lupus antibody.
What I would like to know is do any of these test results or symptoms trigger a possible diagnosis from anyone? I don't really see a connnection with lupus but I noticed many of you have a lot of other diseases and conditions listed. I'm really confused with what's going on with my body and i'm not sure my doctor is on the right track.
Some other problems i've had in a past few years in case anyone can relate with them...
I've got major skin issues, I have several sores throughout my body which never seem to completely heal, lots of them constantly drain puss and/or blood. (Sorry to be so descript
ive) I do not have diabetes.
I aslo break out with rashes a lot, usually on my hands, breasts, abdomen and across my nose and cheeks (it doesn't appear to be the butterfly rash)
I get severe pain my legs which feels like it's coming from deep in the bone.
I've been diagnosed with degenerative joint disease in my left hip.
I have tons of back pain, which may be do to my weight and the fact that i carry it mostly in my stomach.
Over the past year or so i've been waking in the middle of the night due to my arms falling asleep, all the way from the top of my shoulder to my finger tips and it seems to be getting harder to "wake them".
I have a lot of stretch marks that started out in my teens at a normal weight which I always found strange because I never went through a rapid weight gain and most of the women in my family don't have them and didn't even get many through pregnancy.
I've been skipping periods for four weeks at a time sometimes and when I have them they seem to be very clotted. I've never had kids and since the age of ten my period came just about
every 28 days up until this past year.
All around my chest, abdomen, under my arms and the upper portion of my arms are all very painful to the touch. I can barely take the doctor holding the stethoscope to me.
I am so tired all the time. I feel like i'm dragging my body around.
I also had many bouts of acute pancreatitis from ages 10-25 without a known cause. Possibly even an earlier age without diagnosis because of ER visits with severe stomach pain as a shild.
Sorry to have written so much but I wanted to write anything I could think of that may cause someone to make a connection or give me a lead with something. And i'm sure most of you know how it is to visit the doctor and barely have time to say one thing to them before they're rushing out of them room. Or not saying anything because you don't want them to look at you like you're crazy and paranoid. lol!
Thank you for giving me a forum to speak, any advice will be greatly appreciated.