Thanks Lynnwood and mawmaw for your answers. I'm quite familiar with the Lupus.org website but thank you :) As for the symptoms of Lupus, I have many of them however some of them can be explained by my Uc as well so that is where I get confused. I have never been to a rheumy yet and I was offhandedly diagnosed with fibro though I question that diagnosis since I don't fit some of the criteria.
I know that Lupus can be hard to diagnose, especially in the early stages. So by the time the signs are very evident, can it damage things in the body that is irreversible?
Here are the symptoms I have been getting - but some of them aren't consistant so that is why I was wondering if the symptoms are consistant or intermetient (sp?). By the way, I took this list off the lupus website.
Achy joints - yes - with Uc, joint pain is common but I'm in remission from my Uc in which the joint pain should be minimal but it's not
Fever - yes, sometimes its very low grade though
Arthritis / swollen joints - yes to arthritis but it's minimal in my lower spine
Prolonged or extreme fatigue - yes, but once again it can be because of Uc and the meds that I take
Skin Rashes - a resounding yes! I have been having rashes off and on for a while and I even had the butterfly rash last year a couple times but since then, it hasn't come back.
Anemia - yes but I believe that is due to my Uc
Kidney Involvement - no
Pain in the chest on deep breathing / pleurisy - sort of, I've been diagnosed with pleurisy when I was 4 and have sporadic bouts of this
Butterfly-shaped rash across the cheeks and nose - see above
Sun or light sensitivity / photosensitivity - my eyes are sensitive to light due to having German Measles as a child but sunlight and heat - I am sensitive too and feel achy, feverish and faint
Hair loss - no
Abnormal blood clotting problems - no
Raynaud's phenomenon / fingers turning white and/or blue in the cold - yes and I think right now that is my biggest problem mainly because it's been cold out
Seizures - no but I do have fine tremors in my right arm
Mouth or nose ulcers - yes, I've had nose sores off and on last year
In addition to the above, I also have Sacroiilitis and nerve damage on the right side of my body.
I have been tested numerous times for Lupus, though I don't know which test my doc used. And trust me, I DON'T want a Lupus diagnosis, nor do I think any of you do either. I just want a name to my demons if you know what I mean?
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~Left sided Uc -'92 - Colazal (9 daily), 6mp (50-100mgs), Prilosec, Biotin, Forvia, Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa** ~Allergies - Singulair
~Secondary Reynauds Syndrome -'04 - Norvasc~Fibromyalgia -'06~No meds
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Posted 2/20/2008 11:32 AM (GMT -7)
Most of us here agree that only a rheumy who works regularly with lupus is qualified to give a lupus dx. As you've found, it's an elusive disease that presents differently for each individual. A fair number of us have overlapping dx and/or overlapping symptoms -- no absolutes when dealing w/autoimmune diseases, it seems. Cheers,
Lynnwood, Co-Moderator: Lupus Forum
Dx Lupus since '00, new Dr wants to Dx Fibro instead.... SLE (’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1 Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex Links: DIAGNOSING LUPUS (4 of 11) , LUPUS INFORMATION , LUPUS RESOURCES , Donate to HealingWell , Drug Interactions
Posted 3/1/2008 2:03 PM (GMT -7)
Hi Red . . .I've been away for a while, but saw your post. I agree with Lynwood's responses. AND many of us are treated for lupus w/o an official dx. Me included. I 'think' your malar rash, nose ulcers, and plueresy are more characteristic of lupus than UC . . . but I don't know that much about UC. You certainly have many of the symptoms for lupus. When your doctor does the ANA test . . . are you positive??? If yes, find out what the patter is. There is a post in "Lupus Resources" which discusses the different patterns and what they suggest. If you get a rash or nose/mouth sores and are able to get pictures. . . make sure you do so and bring the pics to the rheumy with you. Keep us posted!! I know what you mean about wanting to know exactly what you are dealing with. I see the Gastro on Monday and have been doing better in that department. Blessings! In His Grip
AlwaysRosie " We can't control the waves, but we can learn how to surf!! "
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
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