I seen a new Rheumy yesterday, he asked me why I thought I had lupus? I told him the on-set symptoms I had when first dx, he said if I had no kidney involvement, seizures and phycosis (sp?), then he said I don't have Lupus. I told him 3 diff. DR's have confirmed that I do. He then said 'Well, I will do bloodwork, and that a pos. ANA does not comfirm Lupus'. He then asked my why I was there?, I said I have new symptoms-neck and pain gets stiff and I hve elec. feeling pain running frm neck to left leg, almost daily, left hip pain, I can barely walk on some days. I asked him for something for the pain, he then said 'What type of Norco do you want?' I couldn't believe he told me that. I told him "I'm not here for Norco meds!!" I acually felt like he didn't believe me". DR. said any med I give u the side effects are bad especially on your stomach. I felt this is ridicoulos!! when I first told him about my back, he started saying "there are thousands of people w/back problems, everyone has back issues" It got to the point that I started to cry a little and I told him I just want something for my body pain. He then said I def. have Fibromyalgia, I said yes, I know.
In the end. he didn't give a refill for the pain med I do have which is for muscle spasms. I had more bloodwork done (Lupus panel), I had one done last month, for new primary Dr. which did show inflammation, I told him I already had it done.
I felt I wasted my time there, HB was very upset, wanted to see the DR. and ask him why he didn't believe I Had Lupus, when other DR's confirmed it and that I needed some pain med, but Dr. wasn't avail. anymore. Also, I have never heard of phycosis, as being part of Lupus. Has anyone?