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New Member

Date Joined Feb 2008
Total Posts : 9
   Posted 2/26/2008 11:52 AM (GMT -6)   
This is my first time on this site.  I have a question for anyone out there.  My first symptom of lupus is tingling up and down my arms.  My rhematologist has not heard of this symptom is any of his patients.  It feels kind of like my arms are starting to fall asleep.  It is definitely worse in the sun.  Does anyone have this same symptom?

Regular Member

Date Joined Apr 2006
Total Posts : 169
   Posted 2/26/2008 12:20 PM (GMT -6)   
Welcome aboard'
I too feel tingling on arms and legs. My arms when exposed to sun start feel like there burning. When outside and exposed to sun I feel weak and I feel my whole body tingling or like this weird feeling all over.
I wish I could enjoy the sun for at least 10 min and just relax.
Take Care

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 2/27/2008 12:19 AM (GMT -6)   
Hi Sabers,
   Welcome to the forum. I also have tingling in my arms and legs at times. We have alot of whacky symptoms that are sometimes new to some doctors. I hope you get some relief soon. Please keep us updated and take care. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Regular Member

Date Joined Mar 2007
Total Posts : 153
   Posted 2/27/2008 6:43 PM (GMT -6)   
When I am in direct sun, my skin feels like it is being pricked all over with lots of little tiny pins. Not sure if thats what your talking about though.
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/27/2008 10:06 PM (GMT -6)   
My tingling in the sun is caused by photosensitivity, which can be caused by lupus or some of the lupus medications.

Tingling in arms, legs, hands, feet I've found to be minor neuropathy; basically a nerve inflammation that comes and goes with lupus activity.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
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Regular Member

Date Joined Aug 2006
Total Posts : 142
   Posted 2/29/2008 12:12 AM (GMT -6)   
Yep, I get it too. I used to get it atleast a few times a day. Since the plaquenil I get it maybe once a day. Funny, my rhemy said thats pretty common with autoimmune disorders like Lupus/RA.....
Dx: UCTD,Raynaud's,iron deficientcy anemia,proteinuria
Rx: Multi-rec folic 500, Celebrex 200 mg, Plaquenil 400mg, Ultram PRN

Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 2/29/2008 6:09 PM (GMT -6)   
i get tingling in my arms when i go in the sun especially when i am on high doses of prednisone
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 3/10/2008 3:23 PM (GMT -6)   
Hi Sabrers . . . . a belated Welcome! to the forum. I missed your post when I was away for a bit.

Yes . . . I get the tingling too and my limbs also fall asleep easily. This is all worse when I'm flaring.

Glad you found us!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Member

Date Joined Mar 2008
Total Posts : 7
   Posted 3/12/2008 5:42 PM (GMT -6)   
Hi, I'm new here hun but I've been to a neurologist and he did some test on me and ruled the tingling as a moderate form of neuropathy realted to my lupus dx. Basically, I was told that it was a combo of being sensitive to the sunlight (cuz i get blisters and the tingling is worse) and lupus attacking my central nervous system. but that is all i know right now. i'm tryin to get more answers too...

you ever feel like you are wearing socks or a hat even though you don't have one on? that is the neuropathy part. i know more about the nerves than i do lupus because i've spent the last 8 months in a neurologist office trying to figure out what was wrong with me...evidently this cruddy lupus crap i've got went straight for my nerves and kidneys. the sunlight gives a pirckly, piercing kinda tingle, the neuropathy stuff gives the numbness,muscle weakness and a all over tingly...almost like a muscle spasam twitch but it is a nerve ending spazing out getting ready to go bad. the neuropathy follows your nerve endings... like along your cheekbones, down the front of your nose, down the sides of your arms and in certain patterns on your back ect... pretty much in the places you'd get shingles.

I hope this helped.
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