Hi everyone. I have been browsing through your forum and was hoping I could get some advice from you all. I am 27 years old and I have an 18 month old daughter. At my last dr appt, I was told I tested positive for Lupus. I have no clue what sort of test they did and I do understand that a blood test is not going to tell you that you have lupus.
I have had chronic unexplained hives since I was 13. They come and go, sometimes years at a time. I take atarax and benedryl for them. They tend to come with stress and anxiety. This last time they started, my hands and feet were so swollen I couldn't walk or use my fingers. When the swelling would go down in response to meds, my joints would just ache. I have also had painful swelling in my throat and chest. This is what sent me to the dr, to get a steroid shot and update my atarax. He suggested claritin, which works great (doesn't make me sleepy) and that I be tested for RA. When I went back, it was a different dr and she was no help to me at all. So, now I have an appt w/a rheumy, but it is not until mid April. I am very concerned that when I go to see him, my diagnosis will fall through the cracks. Where I live, dr's appt's are hard to come by and offices are jammed with patients.
Along with this news, I am anemic, have been for most my life. Is this related to Lupus? I have been so tired all day long, that sometimes it is hard to care for my daughter. I am sad a lot and so fatigued that I feel depressed. The joint pain is most noticable when I have been busy doing things all day, or after things like rocking my daughter. My memory seems to be different too, I forget so many things, like what day of the week it is. No matter how hard I think, it just doesn't come to me. I had graves diease, and 4 years ago I had a total thyroidectomy. I take synthroid to regulate it. I have vitiligo, which is an autoimmune skin disease. This came at the same time my hives started. I also had meningitis when I was 16, which put me in a coma, luckily I survived.
I guess I am just wondering if anyone shares my same issues. I am so tired of being tired, I just want to have the energy to make it thru the day. Any advice on what to talk to my dr about? I am also wondering if I should be worried about trying for baby #2. DH and I are just waiting for my appt in April, then we would like to try again. Thanks if you made it this far, and for your help and advice.