This is my first time here and was just diagnoses with Lupus (SLE). Looking back at all the sx i think i've had this 10+ years. I've experienced everything from the tingling sensations up/down my arms/legs, memory loss, SEVERE joint pain, headaches, butterfly rash, vision problems, changes in behavior, IBS, life threating allergic reactions, SEVERE, SEVERE fatigue, protien spilling from my kidneys, the list goes on.
My OLD PCP (DR) would just treat the sx with the end results of me taking 10 pills to wake up with and 10 pills to go to bed with. I switched Dr's only to be diagnosed in a week with the new Dr.
IM UPSET/ANGRY and CONFUSED. Crying outload!
What am i in for? Im in a active flare up now. How long do they last, what will i feel when i start to come out of this? How often do they come back? How will i know another one is coming? Please HELP i must find out!!!!
My daughter also was tested last year with a +ANA. She is a freshman in college, a chemistry/PRE-MED major. I need to become knowledgable of this journey I've been given. I will walk the walk but let me know the trail before my daughter has to wallk it with me. Please pray for me i'm trying to be strong.
Newly diagnosed with SLE, confused, scared and overwhelmed!
Breath.... This too shall pass!
Deal with the here and now today!
Look towards the future for tommorow!