not sure how far back some people have read on the posts, but a while ago i posted about going to the docs to start the process about getting ready to get pregnant. I have seen my PCP, Local Nephrologist, Transplant Nephrologist, Neurologist, therapist, gynecologist, high risk paranatal ob and will be seeing an endocrinologist at the end of april to see if i can still get pregnant. so far out of the docs i have seen two have said its not a good idea to get pregnant. (PCP and Neurologist)
ok so here is my problem. I have researched and researched and researched everything about the pregnancy stuff, i even researched all of my meds and the meds that the docs would be changing me to if i can get pregnant. but i am still kinda afraid of getting pregnant. Right now all my meds are in perfect harmony and are keeping me from flaring and i really am afraid to change them. I really want to have a baby and so does my hubby. and i looked into adoption (i want to adopt from the philippines where i am from) and do that would cost like $20,000. and my husband wants a baby that came from me and him, and he is not exactly warming up to the idea of adoption. and the difficult part is not even the lupus or the kidney transplant because those docs are actually optamistic about me getting pregnant and having a baby. but since with me i also have pseudo-tumor cerebri and the neurologist said the only thing i can do is stop the medication and doing that will either worst case bring back those awful headaches or best case the headaches dont come back. i dont know i'm confused and i absolutely hate not knowing what to expect and i know that is one of the reasons i am so scared. advice please, no matter how big or little it would be most greatly appreciated.
Hugs and prayers, If it was easy being a lupie,
~Suzanne~ the whole world would be one
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain