Posted 3/9/2008 10:41 PM (GMT -6)
Who ordered your echocardiogram? Do you have a cardiologist? They are the ones who should be explaining all this to you. How can they expect you to know what is going on!!! I can understand your frustration here. That is information that needs specialist explainations!
I do have mild mitral valve regugitation. My condition is called Libman Sach's Endocarditis, or inflammation of the mitral valve. Lupus caused. So I get an echo done every year to make sure the regurgitation isn't getting worse. The only thing to treat this is prednisone, as far as I know.
The other things you mentioned, I have no idea about. A cardiologist really needs to be added to your list of doctors if you don't have one.
The pregnancy thing is a tough one. I can't have children due to my lupus, blood clotting disorder, etc. It's just too risky. I've been told that if I ever did get pregnant, I probably would miscarry because of the blood clotting disorder (APS). My gyno said I would have to be in remission, true remission, for at least one year before trying to conceive. Just keep this in mind too.... We have enough trouble looking after ourselves most days. If you have a child, looking after yourself becomes priority #2. The child comes first. Can your body handle that? Can you manage massive flare ups plus look after a child? I sure can't. Just my own opinion. I wish I could be mom. But it isn't my reality. I'll be a great aunty to my nephew instead. Lots to think about.
Let us know what happens with your echo okay!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus