Sores on the roof of my mouth!

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New Member

Date Joined Feb 2008
Total Posts : 9
   Posted 3/10/2008 1:56 PM (GMT -6)   
For the last three days I have these huge sores on the roof of my mouth.  I can't tell if they are canker sores or lupus related sores.  I have never had them before, so just wondering what the difference is or if there is a difference.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 3/10/2008 3:31 PM (GMT -6)   
(((((( Sabers ))))))))

You likely have lupus sores in the roof of your mouth. Maybe Lynwood or someone else with more knowledge can help us out on this . . . but I wonder if lupus mouth sores ARE canker sores. . . caused by the off immune system.

Great topic. Some have found that B12 helps prevent mouth sores.


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New Member

Date Joined Feb 2008
Total Posts : 9
   Posted 3/10/2008 4:13 PM (GMT -6)   
Thanks AlwaysRosie

Veteran Member

Date Joined Dec 2007
Total Posts : 2113
   Posted 3/10/2008 9:47 PM (GMT -6)   
I find 1000mgs of Lysine (an amino acid) helps heal the mouth sores quickly.

Regular Member

Date Joined Feb 2005
Total Posts : 25
   Posted 3/11/2008 9:30 AM (GMT -6)   
I get a lot of mouth sores. They can be very painful so I feel for you. I believe they are caused by lupus as well as some of the drugs used in treatment. I have a prescription for magic mouthwash. It is equal parts of maalox, lidocaine and benadryl. You swish it around and it numbs your mouth allowing you to eat. I don't find it has an after taste but having a numb mouth may not suit everyone. People that take methotrexate sometimes take Folic acid to help with the side effect of mouth sores.  Hang in there. Christi 

Diagnosed with SLE 10/2003

Regular Member

Date Joined Dec 2006
Total Posts : 185
   Posted 3/11/2008 10:08 AM (GMT -6)   
i agree with the miracle mouthwash it works very well for me but whatever you do dont swallow it.. it numbs very well but be careful eating that you dont bite your me it will only take one time and it wont happen again...but it does help with the mouth sore pain... good luck
Female: 36 yrs/old DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. mitral valve and tricuspid valve regurgitation, 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07, discoid lupus sept 07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid solutabs

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 3/11/2008 6:20 PM (GMT -6)   
I agree with Rosie, your sores definitely sounds like the lupus mouth sores. I too use the magic mouthwash, it especially works well for sores on the tongue and roof of your mouth. I also have an RX paste and folic acid. The folic acid works best for me, I usually take 3-4 1mg tabs a day and it does a great job at keeping them away!

I hope you find some relief soon!

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 3/11/2008 8:03 PM (GMT -6)   
Hi Sabers:

Yep, it sounds like you have lupus oral/nasal ulcers. Everyone has given you good advice on the magic mary's mouthwash, and taking folic acid. I just wanted to welcome to our group and I hope your ulcers clear us really.

Take care,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Veteran Member

Date Joined Oct 2004
Total Posts : 4083
   Posted 3/13/2008 12:48 PM (GMT -6)   

Although I dont have an offficial dx of lupus, I have many symptoms, alway the way to the mouth sores, hate those ones on the tonge too. So this magic mouth wash, is a presctiption I am guessing?

I have some weird stuff my dentist gave me but it not really help too much. I also have some stuff called mouthkote, it helps a little bit.

Do any of you get bunches of sores around the outside of your mouth and lips too? if so what to you do about them?

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