Another Question.....

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Regular Member

Date Joined Mar 2008
Total Posts : 75
   Posted 3/11/2008 11:57 PM (GMT -6)   
               So...   Did any of you NOT have symptoms of Lupus when first diagnosed then develop them later on?? For example, the mouth sores, hair loss, the photosensitivity etc.... or did you have them when you were initally diagnosed?? Im just wondering if I do have Lupus if I will develop these symptoms later on or if I have another auto immune disease. Right now I only have 2 symptoms of Lupus.

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 3/12/2008 12:55 PM (GMT -6)   
Hi nsearch, I have some symptoms now but not others. It can take years for enough symptoms to appear to be diagnosised with an A/I disease. That's what so frustrating. If you have Lupus you might have symptoms appear today or 10 years from today or never at all. Most doctors treat the symptoms long before a diagnosis.
I'm sure others will be around to explain it better than I can
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!

Veteran Member

Date Joined Jan 2005
Total Posts : 659
   Posted 3/13/2008 6:39 AM (GMT -6)   


When I was first told by my doc (Nephrologist) he thought I had lupus I thought he was nuts! I felt fine, just had a lot of unexplained fluid. My diagnosis came easily because I have lupus nephritis. I did develop many other symptoms over the next few years and knew without a doubt that he had been correct all along. Hope this helps.


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
meds: plaquenil, amiloride, klor-con

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 3/14/2008 10:14 AM (GMT -6)   
The first sign that I had something occurred 9 or 10 months before the first flare.  On a routine blood test my platelet count dropped and my internist sent me to a hemotologist.  Many months of testing and testing again produced no explanation and my doctor speculated, by process of elimination, that I might have lupus.  I also had mild anemia.
In retrospect, I had mild anemia and low platelets for at least 15 years before the first flare so the disease was lurking in the dark ready to pounce.
After the first flare 3 years ago it rapidly progressed and within a few weeks was able to confirm that I had lupus.  He felt I had more than just lupus and thought I had mixed connective tissue disease which was confirmed about 2 months later.
Auto immune diseases can be asymptomatic for a long time, even years, and then become symptomatic after some trigger pushes it over the brink.  An earlier trigger pushed it to the edge but something later on pushed it over and you became symptomatic.  I was lucky to have had a blood test just when my platelet count dropped.  Otherwise, it would have been a complete surprise.
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
Maintain your optimism and you can beat the odds.
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller

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