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Regular Member

Date Joined Mar 2008
Total Posts : 75
   Posted 3/12/2008 2:18 AM (GMT -6)   
         Hi All:
         Sorry if my last post was a little confusing and impersonal. I was in a big hurry and now re-reading it sounds way more confusing that what it needed to be. I just wanted to know if anyone didn't have symptoms of Lupus before they were actually diagnosed? Out of the 11 criteria for Lupus I have 2 symptoms. From my post a few days ago Im currently suffering from joint flare ups every now and then, some dizziness and heart palpations. I also have a positive ANA which I've learned could mean anything. I have to wait until June for an appointment with a rheumatologist because I am a new patient (typical HMO). Im also changing my priamary care provider and I see her the end of May. She's suppose to be really good and highly recomended. So Im pretty excited!!!!
I was reading some of the other posts and my heart, prayers and tons of hugs goes out to everyone who is dealing with this sickening and devestating disease day in and day out.  I only hope I have the kind of strength and courage that everyone else has to tackle this thing head on.  Thanks everyone for your support and input.  ((((hugs and blessings to all))) 
~Natalie~  :)

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 3/12/2008 10:50 AM (GMT -6)   
Hi Natalie, your other post did not sound impersonal at all, a lot of folks aren't up too late at night and I don't think many people post until the afternoon. I am off work today but normally I don't get on the boards till the evening.

To answer your question, no I had symptoms of lupus when I was dx actually for years before my dx. Lupus is a disease of 1000 faces and very hard to dx. There are a lot of rheumy's out there that are not up to date on it therefore only look at lab results rather than looking at the whole picture. I hope your rheumy is a good one and spends time with you trying to figure it all out. To give you an idea of what to expect on your first visit, my rheumy spent about 1 1/2 hours with me, going over the list of symptoms I put together, looking at my past labs (as this was the 3rd rheumy) and asking about my family history.

Keep a list of your symptoms, when they started and try to pinpoint the joint pain. I hope I have answered your question, please let us know how you are doing and how your appt goes. Take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

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