Hi...this is my first time on here and have been reading everyone's posts. I have had ongoing problems over the last several years that started with fibromyalgia and then muscle weakness on the right side of my body. It took three years, one rheumatologist, and two neurologists to find out I have myasenthia gravis. Its symptoms can be similar to MS, but it is not degenerative and you do fine if you stay on your meds. I had started with some new symptoms about
3-4 months ago. Mostly at night I would have these sharp, burning pains throughout my spine...felt almost like the pain was trying to push its way out...sounds weird, but only way I know how to describe it... then the pain would just start randomly going through my joints, legs, hands, hips, shoulders, you name it... Almost unbearable at times. I would have these spells about
2 times a month or so... (was hoping they would just go away). It had been awhile since I went to my neurologist, so I had to go to family doc for a referral...she went ahead and did some blood work and my SED rate came back at 88... Just wondered if there is anyone out there with either myasthenia or fibromyalgia and had any of these random shooting type pains... with the fibro...I had had the joint pains, fatigue, and just feeling lousy, but I never had these "explosions". They can go on for a few hours before any meds take hold. Just wondered if this SED rate level means something in terms of these random episodes, or is it to do with the fibro or myasthenia... I never knew about
SED rates before...they might have checked them, but never knew about
it...anyway...thanks for sharing... K.