Kidney symptom help

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Regular Member

Date Joined Mar 2008
Total Posts : 39
   Posted 3/21/2008 2:11 AM (GMT -6)   
I hear a lot about kidney complications with lupus. Its made me a little nervous and I was wondering if there are any signs I should watch out for? Or things I should not eat/drink/do to insure my kidney health?

Regular Member

Date Joined Oct 2007
Total Posts : 61
   Posted 3/21/2008 5:23 AM (GMT -6)   

Hi Jenn,

I can relate to your anxiety as i was recently diagnose with SLE Lupus.I'm with you Jenn and feel the same way.I worry so much about my kidneys now.From what i read so far,some people get NO SYMPTOMS at all when their kidneys are being attacked.That is why it is so important to follow up with your Rheumatologist and have a Unrinalysis to check for protein and also have blood drawn for BUN/Creatinine.The most important value in the Creatinine though.

But,if you want to watch out for symptoms of Lupus Nephritis look for......

1) Increased urinating(early onset)

2)Swelling of the eyes,face,feet or ankles

3) Dull ache or pain of the lower back

4)Itching and flakey skin

5) Unable to urinate(late symptom)

6)confusion and feelings of agitation as blood ammonia levels rise (much later symptom)

7) Increased Blood pressure too.

I hope this helps you a bit but just follow up with your M.D. on a regular basis and if you feel anything new or any of the symptoms above go to your Rheumatologist and have him/her check your Urine and blood.



Regular Member

Date Joined Oct 2007
Total Posts : 61
   Posted 3/21/2008 5:30 AM (GMT -6)   

Oh and Jenn....If you are in otherwise good health...drink PLENTY of water.I also follow a anti-inflammatory diet that Dr.Weil recommends for people with Autoimmunity to prevent further inflammation.Go to Dr.Weils Website and check out what he recommends for people with Lupus.

One other thing to look for as a symptom of Nephritis is Dark colored urine.That would be a late symptom though.


Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 3/21/2008 12:35 PM (GMT -6)   
Yup, water.

Since many of our meds can cause damage if they accumulate in the liver or kidneys, it is important to drink your 8 glasses a day. (Don't drink too much, that can be a problem too.)

Also watch for other drinks - like caffeine & carbonation - both hard on these organs. Try to treat them a little more gently than you might have thought about before, but don't make it a bit deal. There are many of us lupies that DONT have kidney or liver problems.


Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
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New Member

Date Joined Jan 2007
Total Posts : 17
   Posted 3/21/2008 3:34 PM (GMT -6)   

Foamy urine is a sign of protein loss in the urine

I have lupus nephritis and other than increased urination the foam is a symptom to take notice of.

Regular Member

Date Joined Mar 2008
Total Posts : 60
   Posted 3/22/2008 12:01 PM (GMT -6)   
Does the increased urination mean you're producing more volume of urine, or just more frequency, or both?

I remember once years ago, I was unable to urinate and got those feelings of agitation (BAD!). But it was only for one day...I couldn't urinate the whole day or night, but the next day, I woke up and was back to normal. So surely that wouldn't have been a kidney problem, would it? Can that happen if you're just retaining water? I've always wondered about that because it was so strange and really miserable.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 3/22/2008 6:57 PM (GMT -6)   
In addition to all the other symptoms people listed, I know for myself, I felt worse than usual when my kidneys were spilling protein. My fatigue was more severe than usual and I just felt really sick. I have read that other people with kidney problems have also felt that way. It stinks to have to worry about all this stuff.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Regular Member

Date Joined Oct 2003
Total Posts : 262
   Posted 3/22/2008 9:10 PM (GMT -6)   
also when you are looking for signs, water retention is a good indication but not just in the ankles, hands and eyes although those are really good indicators, i have lupus nephritis, and when you get that bloated feeling even though you havent eaten, also fatigue like someone else said, but mostly keep an eye on your urine after you pee. And i know that it sounds gross, but I look at the toilet paper after i wipe because it will be a different color if you are spilling proteins. watch out for dark urine (brownish color, not dark yellow) because i was told by my doc that usually dark yellow is more a problem of not getting enough fluids. and remember you can always ask your doc.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

Regular Member

Date Joined Mar 2008
Total Posts : 39
   Posted 3/26/2008 2:39 AM (GMT -6)   
Well now Im just paranoid. I have that blue stuff in my toilet water so I can't tell anything with by color. My feet and eyes are ALWAYS puff, since I first started with this whole lupus thing 4 months ago and not to give out too much info***warning** this may be crude to some--my pee is always a little 'frothy' . I have a fast stream *cringeing*....

I guess I will just keep doing my 24 hour pee test. That sucks SOO much. Its embarassing, my 5 year old son won't stop trying to see what that big orange container is and my boyfriend doesnt say anything but that has to be gross for him. We have a small bathroom and there is no where to hide it =S

Regular Member

Date Joined Mar 2008
Total Posts : 110
   Posted 3/26/2008 9:23 AM (GMT -6)   

Hi Jenn,

When I was dealing with my nephritis, it was well before I was even diagnosed with lupus. I had no idea there was even anything wrong with my kidneys. I wanted to sleep all day, even though I had slept all night. My eyes were constantly swelling up to the point of closed; and not a single doctor I saw could tell me what was causing that. (Even though I kept insisting it had to be lupus, they told me I was crazy.) I also had severe lower back pain when I woke in the mornings that would go away after getting up and going to the bathroom, and my urine was always dark. I thought I just wasn't drinking enough water. The lower back pain had started in my teens, but eye swelling and fatigue didn't start until I was 26 (a 10 year span). I wasn't diagnosed with anything until I was hospitalized twice in one week. I will spare you the rest of the details, as it's just to painful for me to remember. Everybody always insists to me to this day that there are no symptoms to kidney problems, YEAH RIGHT! I'm very diligent now about checking my urine every time I go to the bathroom; as they have some damage now from the nephritis. The good news is that you can bounce back from it.

dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day

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