Hi Ti, when I first got sick I had a continueous flare like you are talking about. I don't normally have a (flare anymore) I have things come up but nothing like when I first got sick. What you are saying I would have to say your lupus is not being controled very well. Are you on plaquenil? if so it can take a good 6 months before it starts to help. As for the tire part I'm afraid that is somthing you will pretty much have to live with. Predisone does help to a point. I have to stay on 5mg. for what they call quality of life. Unless I get really sick and than I have to take a higher dose.
It sounds like you need to discuss this with your rheumy and tell them that you aren't feel better and what else can they suggest. If they don't help it's time to get a new rheumy. You shouldn't have to live like this all the time.
let us know
Lupus like symptoms, stage 4 COPD w/CHF, Cancer survivor. Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4.,lasix,inderal,pot.chlor.,B12
I will never leave you nor forsake you!