Hi Ti, I agree with the others in that it sounds like your lupus is not well under control yet. No one likes to be on prednisone, but you are on a really low dose - a little higher dose might help you feel a little better. Also the hydroxychloroquine takes a long time to get into your system and start to work.
A few times we have talked on here about
what it feels like to have lupus and what is everyone's "normal" and what type of quality of life we should expect to have. I think for myself, I'll always have pain and fatigue, but as long as I can manage to do a few things through the course of a day, then it's a pretty good day. Every so often, I have some really good days. It's so hard to judge what we should accept as far as how good or bad we are feeling. It can take a while to learn to pace yourself too.
I do remember feeling like I was in a constant flare before I started on prednisone though. So far, if I try to go below 7.5mg I start feeling really rotten again. Please do talk to your doc - they might want to adjust a few meds. Take care
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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