Hi Everyone I'm new here

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New Member

Date Joined Apr 2008
Total Posts : 5
   Posted 4/1/2008 7:49 PM (GMT -6)   
:-)   yeah
Hi Everyone I'm new here but not to Lupus. I was diagnosed in 2003. My doctor yesterday labeled me as permanently disabled and told me to apply for SSI since I don't have enough points for SSD. Anyways I also have Rheumatoid arthritis and Raynauds possibly Fibromyalgia I haven't gotten tested yet but my doctor  said he suspects it. I'm 40 years old and single not working live with my parents because I'm their care giver. I just wanted to say hello and I hope I make a lot of new friends here. Warm wishes and hugs, Belinda

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 4/2/2008 7:13 AM (GMT -6)   
Hi Belinda!

Welcome to the forum. Oh dear! You've had it rough haven't you. I hope you make some good friends here and I'm sure you'll find everyone informative and friendly.

Glad you found us.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Member

Date Joined Apr 2008
Total Posts : 5
   Posted 4/2/2008 1:12 PM (GMT -6)   
Thank you Always Rosie,
I'm sure I will like it here. I find its better to find people who know what it is I'm going through instead of trying to go it alone. I find I still morn the person I used to be and wish I could get that strength back. But, I also know that that door has closed and a new one has opened. This is a lesson in my life that my creator wants me to learn and put to a greater purpose. Right know I have no idea what that is.lol Thanks again and I hope to be talking with more people soon. Warm wishes and hugs, Belinda

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 4/2/2008 1:47 PM (GMT -6)   
Hi Belinda and welcome. THis is a great forum and it's so nice to have a place to come where people can really understand and relate to what you are going through. Lupus can be kind of a lonely disease because it's really hard for healthy people to understand the daily struggles we go through. You'll find lots of support and understanding here. It sounds like you have a lot on your plate right now with your illnesses and also caring for your parents.

Take care and I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

New Member

Date Joined Apr 2008
Total Posts : 5
   Posted 4/2/2008 2:24 PM (GMT -6)   
Thank You Hippimom2,
I look forward to this forum. Take care, Surviveit

Regular Member

Date Joined Mar 2008
Total Posts : 89
   Posted 4/2/2008 5:12 PM (GMT -6)   

I am pretty new to this group as well but everyone here has been very friendly and helpful. I'm sorry you are having such a rough time of it but from what I have seen so far this group is pretty supportive and knowledgable. Welcome!

See you around,


Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/2/2008 5:24 PM (GMT -6)   
HI Belinda, welcome. As you can see this is a great place filled with wonderful supportive people, I hope you like it here! It sounds like you've got a lot going on, feel free to vent anytime! Take care

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

New Member

Date Joined Apr 2008
Total Posts : 5
   Posted 4/2/2008 5:39 PM (GMT -6)   
Thank You everyone for the warm welcome. I see I'm going to like it here already. warmwishes and hugs, Belinda

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/3/2008 7:24 PM (GMT -6)   
Hi Belinda,
   Welcome to the forum. I'm sorry your dealing with all these diseases. This is a wonderful place for support and friendship.
   I was disabled at 40 as well. It was very hard to accept and I still struggle with it at times but life goes on and I'm doing pretty good at 50.... :-) . I hope you like it here and make alot of friends. Please take care and feel free to ask all the questions you want and share anything with us. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

New Member

Date Joined Apr 2008
Total Posts : 5
   Posted 4/4/2008 6:17 PM (GMT -6)   
Wow, It feels like a warm hug. You all are so welcomming. I hope to be able to post on here more in a few days. Do anyone of you find that your pain seems to worsen during that time of month? Mine does, its strange how hormones can wreck havoc in the body. I hope everyone is having a warm and safe day. Surviveit
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