In addition to the above, don't give up. I know people who work for lawyers that have lupus and get lots of time off and not fired, so the lawyers must know something that the average person doesn't. I would contact the patient advocate foundation at 1-800-532-5274 and speak to a real person. The website is: http://www.patientadvocate.org/
There mission statement is:
"Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. "
I hope this helps. I havent contacted them in a few years, but they helped my son. They also supposedly have copay assistance too.
I wish you the best. I was told I resigned from my job because I did not return to work after my FMLA and vacation/sick/holiday time was up. I was in a better position to fight, but was too ill to do it and by the time I got it together, the company had been sold and the statute of limitations run out. I also lost 200,000 bucks of company paid disability that would have gone on for the rest of my life. I am still trying to see if I can recoup that plus some pain and suffering since I had to do without income for three years though I had paid for the policy and filled out the forms.
--Sometimes I think the surest sign that intelligent life exists elsewhere in the universe is that none of it has tried to contact us. Bill Watterson (1958-) cartoonist "Calvin and Hobbes"
Ills--Sjogrens-Lupus-like AI Disease, Hashis, Vitiligo, spinal stenosis/fusion with plate, salivary/lymphectomies, Diabetes, NAFLD, COPD, RLS, neuropathy, trigonitis, hystero, diffuse brain atrophy, GI nightmare
Meds--Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, Estradiol patch, Prosed, Detrol, Klonopin, Ultram, Vicodin, Restasis, Albuterol, steroid injections and pred prn