What is this? Any ideas?

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New Member

Date Joined Feb 2008
Total Posts : 9
   Posted 4/9/2008 12:01 PM (GMT -6)   
I am just going to attatch a copy of my medical history.  I would love any advice.  Help!!!

Medical History

 -I was perfectly fine until the end of my first pregnancy.


-1996-High blood pressure with pregnancy, delivered son 1 month early due to high blood pressure, experienced double vision 1 time, and slot machine eyes 1 time.  I was told it was because my blood pressure was so high.   


-For a few months following delivery I would have episodes of a ring in my ears followed by severe spinning that would last 3-5 minutes followed by vomiting.  I had this happen maybe three times.   I went to an ear, nose, and throat specialist.  Along with this every once in a while I would have a heavy feeling behind my eyes and my eyes would go out of focus for just a few seconds.  I was told I was having some type of migraine


-Then in 1998 I got pregnant and lost the baby.  I went to an internist and he said I had antiphospolipid syndrome.  I was unable to get pregnant for the next 5 years.


-In 2000 I went a week with severe pain in both collar bones, elbows, and the insides of my knees.  Then it went away!  I got sent to a rheumatologist because my primary doctor told me that I had a high SED rate?.  There were no signs of any problems by the time I got in to the rheumatologist.


-In the spring (April) of 2001 or 2002 I began to tingle.  I started in my feet and legs.  This went on but began to move throughout my body randomly and everywhere.   I was sent to Dr. Gasecki. He did a complete work up on me.  He didn’t find anything conclusive.  He did find something in my blood and sent me back to a rheumatologist.  I was diagnosed with Lupus.  My tingling mostly stopped.  It would come back every once in a while lightly and it seemed to be worse around ovulation or menstruation.  It also seemed to be worse in the sun.  I can feel it most in my hands and feet.  I have been treated for lupus for 5 to 6 years and on a drug called plaquneil.


-In 2004 I became pregnant.  I was treated as a high risk pregnancy.  I delivered 1 month early, but other than that had a great pregnancy.  I was treated with predisone right after delivery.   


-Spring 2008 (April) I began to tingle just as bad as it started.  Went to my rheumatologist and had full work up and all tests again.  He said there was no evidence of active Lupus that would cause tingling and to revisit neurologist.  He said I didn’t have any inflammation.  I explain my tingling like those fireworks that shoot up and then open.  A lot of the time it feels as if it is pops bursting at random spots in my body.  It seems to be fairly constant in my hands and feet right now.  It can also feel like ants running up and down my arms and my skin seems really sensitive, it crawls, and it itches a lot. HELP!!!!!!!!     

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 4/9/2008 6:49 PM (GMT -6)   
Hi Sabers,
   I'm sorry to hear you have been through so much. These diseases are so weird sometimes!
   In your last paragraph you said the rheumy wanted you to revisit the neurologist. Have you had neuro problems in the past? I had some neuro problems from lupus but, my labs showed the disease very active at the time.
   The ant type feeling sounds alot like the symptoms I use to get from restless leg syndrome before I got on the right med.
   I have alot of tingling in my hands and feet from Fibromyalgia. Also, my skin is very sensitive to the touch. Fibro can cause alot of symptoms but, muscle pain the the worst symptom for me. The doctor can do a simple test in his office to tell if you have fibro by pressing certain tender points on your body. Fibro won't show up in your blood work.
   I'm sure someone else will be along soon to give you better advice. I hope you get some relief soon. Please keep us updated and take care. You will be in my thoughts and prayers.
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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